Recent content by Vonzuber

  1. V

    New and confused

    Thank you for merging the two. A newbie mistake. On the one hand, my current neurologist seems to be taking a slow process and working through alternatives to rule out other diseases or issues that could be causing my symptoms. (rheumatologist, sleep doctor, nerve biopsy, MRI, EMG) However, on...
  2. V

    New and confused

    Re: Is it ALS? ok, Thanks for the update and insight. I was following a suggestion and was not clear on it. I apologize for any confusion. I am just very frustrated with where I am and how I feel. I will try to get a copy of the EMG.
  3. V

    New and confused

    Re: Is it ALS? Upper is what I recall on the summary from my doctor.
  4. V

    New and confused

    Is it ALS? Greetings, I am new to the forum, but am interested in learning more about ALS/MND. I am 54, and I have had progressive leg and arm weakness for almost two years. The fasciculations and cramps in my legs and arms has been increasing. I have had extreme fatigue for a long time and...
  5. V

    New and confused

    Thanks :-)
  6. V

    New and confused

    I thought of going to another Neuro; however, I was made to feel this sense of betrayal. When I asked for my records, I was quizzed by the office staff as to why I wanted the records and who was I sending them to. Then a recommendation to see the sleep doctor. Sad to say, but I feel too tired to...
  7. V

    New and confused

    I have been to some rehab due to the weakness. There are indications of muscle atrophy in my legs
  8. V

    New and confused

    oh, the Rheumatologist thought I had Vasculitis with nerve damage. Had a nerve biopsy, negative.
  9. V

    New and confused

    Greetings, I am new to the forum, but am interested in learning more about ALS/MND. I am 54, and I have had progressive leg and arm weakness for almost two years. The fasciculations and cramps in my legs and arms has been increasing. I have had extreme fatigue for a long time and seems to be...
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