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  • Hey I came across your thread and am in the neuro limbo as well. Got sent home with partly paralyzed vocal cords/ larynx and jaw clonus or dystonie and have to wait and see. I cough and drool a lot and get speech therapy which I can definitely advise as bulbar pals get it too. I wonder if you had a spinal tap to rule out inflammatory diseases and blood tests for Myasthenia gravis etc.
    Best wishes Kiki
    Kiki123
    Kiki123
    That's a shame I hoped for it. The ENT found out that my throat muscles are paralyzed via video endoscopy. Consulting an ENT might be helpful with bulbar symptoms. They also can do a FEES to check your swallowing muscles. The neuro can't emg them.
    I have another neuro appointment and will ask for an emg in bulbar muscles again. Had a clean one in December 20. Hope for you they find sth treatable!!
    Best wishes
    Kiki
    V
    Vivz
    Where did they do your emg in dcwember? Which muscles? All my muscles are normal via emg besides the ones on the facial nerve
    Kiki123
    Kiki123
    I saw your thread but am not good at interpreting emgs. What causes did your neuro mention?
    I'm from Germany. They only tested right arm and leg which is a shame.
    I'll do the Fees next week and see what they detect. Though the wait and see approach is horrible.
    Hi, did you ever find out what was going on? I’ve been having very similar symptoms to you, especially the feeling of increased saliva.
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