Recent content by Vincent

I am at year 8 and other than my left ankle, things are going ok. I can still walk short distances, and putz around with watches. My next appointment at Sunnybrook is to do electrophisiology on me. More needle EMGs and nerve conduction tests. I am sooo looking forward to it. ALS is truly a weird...

I was talking to one of Canada's top ALS researchers and without going to a lot of details just said " there's some unconventional data analysis". It just happens to be done by another Israeli lab. I smell a conspiracy. I had really hoped they would go away and terrorize the MS community and...

Do they take patients from the frozen north (Canada)?

Oh no, somebody who understands medical terminology. Worse yet, you know some neurology. This makes you at incredibly high risk for hypochondria. However, not specifically ALS. This makes you hyper aware of lots of terrible conditions. This is what causes you to jump from twitching ( which 70%of...

I would kill for that EMG. Unfortunately I have an EMG that suggests ALS. Every line on on that report says normal. Please go and give everyone a high five, hug or whatever you do. You will live to see how the world turns out 40 years hençe. Enjoy!!!!

Being entirely subjective, it is almost a useless measure of ability. It kind of gives you an idea of how you see things going. It reminds me of the Pain scale. I've seen people say 10 to a stubbed toe. Having had gallstones, pulmonary emboli, and blood clots. I am familiar with intense pain. I...

Unless you get enjoyment from choking, I'd get one as soon as offered. Decline in breathing function can take the option off the table. Though you don't have to be completely sedated to have one placed. PALS don't always come out of anesthesia without needing to be trached and on a vent. I got...

There are foldable aluminium ramps one can use. We used them until we got a 2002 caravan with handicap mods. Yes it is old enough to vote, get married, join the army, even drink in Canada. The ramp is about 5' long and folds widthwise to slide in beside the seats. Hard to get in for your 6'+...

What he is looking for is Critical Illness Insurance. This type of policy pays out when you are diagnosed with a whole list of life altering conditions. Things like Heart Attack, cancer, stroke, ALS or the like. This is usually a lump sum payment for whatever amount is agreed to. This can be...

As stated, this is merely my opinion. But having seen the change over time in a physician/researcher who I speak to infrequently, I know how it truly become a burden to those who participate. And yes Canada has active euthanaisia available. And we just recently expanded access to aid in dying...

I am not talking family members. I am referring to the people who will be doing the active part. Administering the drugs, even getting you ready. This will damage the medical professions in unimaginable ways. While I'm glad you aren't involving your people in the active part of killing you...

While I understand the the thought of taking yourself out as a thing in ALS.. The thing I don't agree with is involving others in the process. Discuss it with loved ones absolutely. But to involve others in the actual process of being killed, is to place an unfair burden on all involved. Even...

I always had my ALS Clinic fill out all government form for me. They usually know what buttons to push to make things happen. And all correspondence is signed by your Specialist. If you can move to Canada, your healthcare system is really cruel.

When you said bird watching, i was thinking of the British use of bird. You mean the ones that fly.

I wore a full beard for 25 years. Once I was put on bipap I went with a full face mask. So away went the beard and I now rock a stache and a soul patch. Took a while before my kids recognised me as dad without facial hair. Vincent