Vincent's latest activity

  • Vincent
    Vincent replied to the thread Phonation valve.
    This all depends on what function he has as far as muscles that allow speaking go. Eye gaze is nothing more than a tool not unlike...
  • Vincent
    Vincent replied to the thread Why do I feel so bad?.
    As far as nutrition goes, buy a blender and puree what you normally eat. You may need to add water to get a good consistency for the...
  • Vincent
    Vincent replied to the thread Waiting for EMG.
    First things first. Fasciculations in the absence of muscle failure are not indicative of anything. As a matter of fact, 70% of healthy...
  • Vincent
    Relax. The fact that you have mainly sensory symptoms( tingling, feels tired) would point away from ALS. ALS is a disease that affects...
  • Vincent
    Vincent replied to the thread falling backward from walker.
    An inexpensive solution would be to put a sandbag in the basket. While making it heavier, it is adjustable, and may give enough counter...
  • Vincent
    Vincent replied to the thread TDP-43 Protein.
    This alone is the best argument for Open Research I have heard. One of the things we do in Canada is to once a year, get researchers...
  • Vincent
    Vincent replied to the thread Eyegaze systems.
    I've been using the eyegaze app built into windows 10 on my laptop. Team Gleason got together with microsoft to develop this app. All...
  • Vincent
    One of my first falls was descending stairs. The issue was hitting the step with the rear foot only. Lacking any strength in the...
  • Vincent
    Vincent replied to the thread How I spent my summer vacation.
    You need to take up a safer hobby. I'm thinking BASE jumping or the like..... VIncent
  • Vincent
    Vincent replied to the thread extreme air hunger.
    Morphine is a respiratory supressant. Having said that there is a paradoxical effect of in small doses it actually relaxes you so it is...
  • Vincent
    Vincent replied to the thread Easy to press call system.
    If he has a speech generating device, a baby monitor is all you need. If you don't, windows 10 has an indwelling eye gaze app built...
  • Vincent
    Vincent replied to the thread Calf muscle very tight.
    Medical marijuana. I started using this for cramping/spasticity 3 years ago and have not taken baclofen or flexeril since. Vincent
  • Vincent
    Vincent replied to the thread Eczema and ALS.
    Go to the Body Shop and buy hemp body cream. It has a strong hemp oil smell, but nothing beats it for eczema. Vincent
  • Vincent
    It was soooo cold here till well into June. As someone who lived in DC until I was 13, bring on the heat! Vincent
  • Vincent
    Vincent replied to the thread A question.
    Allow me to explain. In ALS the motor neurons die one motor unit at a time. A motor unit is the nerve and the portion of the muscle that...
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