Vincent's latest activity

  • Vincent
    Vincent replied to the thread extreme air hunger.
    Morphine is a respiratory supressant. Having said that there is a paradoxical effect of in small doses it actually relaxes you so it is...
  • Vincent
    Vincent replied to the thread Easy to press call system.
    If he has a speech generating device, a baby monitor is all you need. If you don't, windows 10 has an indwelling eye gaze app built...
  • Vincent
    Vincent replied to the thread Calf muscle very tight.
    Medical marijuana. I started using this for cramping/spasticity 3 years ago and have not taken baclofen or flexeril since. Vincent
  • Vincent
    Vincent replied to the thread Eczema and ALS.
    Go to the Body Shop and buy hemp body cream. It has a strong hemp oil smell, but nothing beats it for eczema. Vincent
  • Vincent
    It was soooo cold here till well into June. As someone who lived in DC until I was 13, bring on the heat! Vincent
  • Vincent
    Vincent replied to the thread A question.
    Allow me to explain. In ALS the motor neurons die one motor unit at a time. A motor unit is the nerve and the portion of the muscle that...
  • Vincent
    If i might weigh in, it sounds way more like carpal tunnel syndrome. Pain in hands and forearms plus cramping sounds like a pinched...
  • Vincent
    Vincent replied to the thread Acthar trial terminated.
    This is why I think Right To Try is a bad idea. Another drug with no benefit but possibly fatal side effects. Vincent
  • Vincent
    Vincent replied to the thread Please help.
    Familial ALS doesn't skip generations. If you had ALS in your family, you would have lots of people in your family who died of this...
  • Vincent
    Vincent replied to the thread Update 6.5 Months into Twitching.
    Just to put your mind at ease, 70% of healthy people twitch at some level. Being the majority, that means twitching is part of a normal...
  • Vincent
    Vincent replied to the thread New member looking for support.
    Hi and welcome to the worst club on the planet. As a first thing, give thanks that you live in Canada. A lot of the expenses people...
  • Vincent
    With a g-tube there is no reason you need to stop beer. A friend used a 40ml syringe and it took an hour but he still had a beer on his...
  • Vincent
    Vincent replied to the thread Pain what really helps..
    There are probably 2 things going on here. Your PCP doesn't know ALS very well and the fact most of the medicines used to control pain...
  • Vincent
    Vincent reacted to notBrad's post in the thread Pain what really helps. with Like Like.
    Take a small ball peen hammer and give your PCP a good rap on the knee cap and tell him that it's not supposed to hurt. It won't ease...
  • Vincent
    Go to your local orthotist and have something made for you. A simple solution might even be using a foot board on your bed. If you only...
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