Recent content by Vicki S

Hi Pat, so far my ALS is in my ankles and lower limbs. I don't think Lithium can fix drop foot and balance which are my two symptons. I'll be happy if it stops the progression right here. I know I'll never walk again because of my balance issues. I fall backwards when I stand up. Vicki S.:-D

I've been on Lithium for a month now. I started with 300 mg my blood was .2 so then my doctor upped to 450 mg and blood was .3. Now I'm on 600 mg. I've had no side effects. Today I have a sore throat. Have to check and see if that's a side effect. Vicki S

I'm still with my local neurologist. The clinic I was told to go to had left the hospital where it was at 5 years ago. I had a visit from the representive for ALSAlabama. She was really informative. She setting a support group about an hour from my house. She told my husband that my bedroom...

I didn't start twitching until I was diagnosed. Now I only twitch when I'm resting. I think it feels funny and I make a little of it.

No Change Hi, I went to Birmingham Wed for a checkup with my specialist DR,OH. He tested me and said haven't gotten worse since last year when I was diagnosed. He also wrote a perscription for Lithium. I just started it.

Dr.Yaeger Hi Lori, Terry Springhill sent something that said Dr. Yeager was the ALS doctor. When we went for the clinic they told us that they hadn't for 5 years. So where is at? What do you think of him. My neurologist doesn't think much of him and neither does his assistant. They used...

Congrats Lorie, I know you and Tim will let everyone know about ALS. This is great. Its amazing how many people have Als. I went to the hospital in an ambulance and the ambulance driver said his uncle has it. Almost everyone I meet says they have a relative or someone they know with ALS...

Off the Walker I fell Monday night and hit my head on the brick floor. I bled like a stuck pig. Anyway they took me the emergency room and they couldn't any lacerations. I do have a goose egg that is very sore. So I told husband on the way home to hide my walker as all my falls have been...

Lithium When I go to Birmingham next week I'm going to see if he will put me on Lithium. I've printed all the info on it and am taking with me to see him. Thanks Al for the links.

Feeding Tube I was one that at the onset I said no feeding tube. I forgot that I wouldn't be able to drink water so that changed my mind. I don't have any problems yet with eating but I told my husband that I had changed my mind about the feeding tube and he told me to put it in writing. Vicki S

Diabetes and ALS I was diagnosed with type 2 diabetes in 1992. I was diagnosed with ALS in 2006. I haven't any lowering of blood sugar. It could be because I party to much and eat all the good food that isn't good for blood sugar.:-D

Living I worked at Webster University in the mailroom. I retired in 1999 because my husband retired. We moved to Daphne, Al in 2004. I was diagnosed in 2007. The health department is getting into checking the environment because so many people are getting cancer and nuero muscular diseases...

I didn't go through denial, sadness or depression with my diagnosis. I was depressed for 7 hours and then I realized everybody dies I just have idea when. Now my husband has gone through every stage that I was supposed through. I have a higher toilet seat with handles and a bath transfer...

Moving Downstairs My husband moved me downstairs today because I was having trouble the stairs. I love my new room. It's closer to the bathroom and kitchen and the bed is very firm which I like. I was having trouble lifting my leg to get into the car and my husband had a thick cover for an...

Cooking I have trouble using the oven so my husband has to come and take whatevers in there out. I have also been teaching how to make favorite meals. We've been through Spaghetti and meatballs and beef stew. Next is going to be Mandarin Pork. It helps that he wants to learn. I've taught...