Recent content by Vera84

  1. V

    39 years old and my symptoms are getting worst

    I don’t have the copy of the genetics test on me . I can get ahold of them, but pretty much when described it to me he just gave me a an example. He said the test should say “ABCDE” and it’s coming out like ADEFG abnormal. I just know that my arms and hands are burning and are tired and feel...
  2. V

    39 years old and my symptoms are getting worst

    Here’s picture of what was said from my medical charts
  3. V

    39 years old and my symptoms are getting worst

    I’m back because a few months ago My Neurologist requested a genetics test. It came back abnormal therefore he sent for a muscle biopsy on my left bicep. The results came back that I have muscle lost/waste there. Fast forward a couple of weeks later. My arms and fingers are really weak. My...
  4. V

    I’m back because a few months ago My Nerologist requested a genetics test. It came back abnormal...

    I’m back because a few months ago My Nerologist requested a genetics test. It came back abnormal therefore he sent for a muscle biopsy on my left bicep. The results came back that I have muscle lost/waste there. Fast forward a couple of weeks later. My arms and fingers are really weak. My...
  5. V

    It’s getting worse

    My breathing issues have increased in the past couple of months. I ended up in ER cause I could’ve breath or catch a full breath for hours. They did a cast scan of my chest and MRI and found nothing wrong, they did a lot of blood work to check for autoimmune of which came out fine. They...
  6. V

    Im back after consulting with the Pulmonologist of my test results

    He said my chest walls are weak and it’s causing my breathing issues. He also stated this could very well be a nerve and muscle problem. And stated that he’s seen this in patients with ALS. Now he has referred me to an internal medicine doctor. All this no one thinks this is even close to...
  7. V

    Breathing issues

    Ok thanks. I don’t smoke
  8. V

    Breathing issues

    NikkiJ said I could post my test results. I was just asking if you guys see anything there similar to ALS
  9. V

    Breathing issues

    Can anyone tell me about these test results?
  10. V

    Breathing issues

    Here are my testing results
  11. 0D37EFED-0F2A-4220-8A2A-47C9234850DD.jpeg

    0D37EFED-0F2A-4220-8A2A-47C9234850DD.jpeg

  12. 1968A7E9-8EF7-49AE-8D1C-F3569FF896E4.jpeg

    1968A7E9-8EF7-49AE-8D1C-F3569FF896E4.jpeg

  13. V

    Breathing issues

    Does anyone on this forum speculate this could be ALS? Given my history and all the breathing issues I’m starting to have?
  14. V

    Breathing issues

    Ok will do Nikki J. What does all this sound like to you, or from experience on this forum, what are your thoughts? I know your no doctor, but I know your very knowledgeable of this. I’ve been in the loop for years.
  15. V

    Breathing issues

    I was given 2 ashma pumps at the ER when my breathing got bad earlier this month, but the pulmonologist on the video call said those are not doing anything for me as everything I’m describing is clearly an issues possibly with my throat muscles
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