I don’t have the copy of the genetics test on me . I can get ahold of them, but pretty much when described it to me he just gave me a an example. He said the test should say “ABCDE” and it’s coming out like ADEFG abnormal.
I just know that my arms and hands are burning and are tired and feel...
I’m back because a few months ago My Neurologist requested a genetics test. It came back abnormal therefore he sent for a muscle biopsy on my left bicep. The results came back that I have muscle lost/waste there. Fast forward a couple of weeks later. My arms and fingers are really weak. My...
I’m back because a few months ago My Nerologist requested a genetics test. It came back abnormal therefore he sent for a muscle biopsy on my left bicep. The results came back that I have muscle lost/waste there. Fast forward a couple of weeks later. My arms and fingers are really weak. My...
My breathing issues have increased in the past couple of months. I ended up in ER cause I could’ve breath or catch a full breath for hours. They did a cast scan of my chest and MRI and found nothing wrong, they did a lot of blood work to check for autoimmune of which came out fine. They...
He said my chest walls are weak and it’s causing my breathing issues. He also stated this could very well be a nerve and muscle problem. And stated that he’s seen this in patients with ALS. Now he has referred me to an internal medicine doctor. All this no one thinks this is even close to...
Ok will do Nikki J. What does all this sound like to you, or from experience on this forum, what are your thoughts? I know your no doctor, but I know your very knowledgeable of this. I’ve been in the loop for years.
I was given 2 ashma pumps at the ER when my breathing got bad earlier this month, but the pulmonologist on the video call said those are not doing anything for me as everything I’m describing is clearly an issues possibly with my throat muscles