Recent content by veggiepete

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    Where did u work

    Was a bricklayer before lumbar fusion in 2012. Before I was pretty active,...was a victim of an over zealous dentist..every tobacco stain was drilled and filled, still don't know if it was nine or eleven fillings I left there with...and may of tried to end things when I was young with slug pellets..
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    Another awareness day June 21

    In the UK the MNDA is doing a silence speaks campaign for awareness month.. As most folks will have problems during the course of things...My wife Doris wants to do a sponsored silence too..I don't think she'll be able to..
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    Clinic Today 6-3-15

    Tripete.. Sorry youve had a rough few days..butting in, just to say that people in our local group are pleased with their peg , and don't regret having it done..my wife is in denial a bit too, did use the d word earlier.. I hope to bring her to the site when she's accepted what's going on, I...
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    Trache ?

    Thanks for the insight Diane...don't think it is an option given in the uk
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    Early Symptoms?

    Still an undecided diagnosis BTW, but lumbar fusion surgery was less an a year before first hand issues
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    Delays in Diagnosis -- What's Proper Follow-Up

    Why the hurry in diagnosis... Als is as much a diagnosis of progression and is as important as the emg... The longer it takes is a plus..
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    maybe this appt

    Well that was quicker than I thought... Date set for infusion 15th of June,,day after my 40th birthday... At least no stay needed, just five days on the trot during the day
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    maybe this appt

    Thanks guys..yes a plus, while there's doubt there's hope...no idea yet on date for ivig, things generally take a while over here...😂
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    maybe this appt

    And again things are no clearer...agreed that I'm bit weaker, but surprised not spread to more muscle groups.. Did mention the mm to him...He's said that mnd is likely butholding hope of mmn and that the three day ivig trial I had wasn't sufficient so a five day infusion is planned....so still I...
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    Graybeard's Final Post

    Wishing you and the family peace, god speed GB..x
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    maybe this appt

    Thanks Tillie, and hi Green Queen..DX yes and no.lol..first told mnd a while ago, but progression has been slower than they expected,think it's cos of mm use... so for nearly two years been -"wwe think you have mnd, but don't tick all the boxes"..we'll see... Take care folks.. Pete
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    Wish everybody would read this

    Love it...,"outlaws are wanted"...cheers needed that!
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    maybe this appt

    Thanks Nikki and Max...of course I'll let you know how I get on..x
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    maybe this appt

    Well appt on the 6th.a lot weaker in arms and shoulders..see if I tick boxes now..if not.I may say to him off the record about use of mm..and I have got my pain management clinic changed to Dr Notcutt for July and want to commend him for his work, also ask why no more research has been done...
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    Wish everybody would read this

    One I've heard a couple of times is " you're so brave".....as Max says iswis.....given the choice I would've ran away is quick as quick as my chicken legs would of carried me...
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