Recent content by vantec

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    Stemcells

    I'm leaving my 1/2 million dollar fortune when I die for Stem Cell research, in the hopes that maybe 20 years from now, they will find a cure for ALS. Conrad
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    I am curious

    Hi patricia1, I used to be cold all the time too. Is it possible that the muscle breakdown is causing the heat? Conrad
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    I am curious

    Hi Jamiet, I was tested for lyme, but not by the labs that can really detect lyme. No, I don't get the chills, but I did before this all started. I don't think I have lyme, because it doesn't effect breathing. Conrad
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    I am curious

    Hi Pat, Thanks for caring. As for what they say I have, they don't know yet. But my breathing capacity was measured, and it was below normal. I feel like I can't take a full breath, and take about 25 breaths a min., but I am not hyperventilating. They also measured nerve degeneration in my...
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    I am curious

    Hi Cindy and all my friends, I've seen 3 Neurologists, 11 doctors in all, had all the blood work imaginable, a brain MRI, 4 EMGs, Cat-Scan and now they want to do an ultrasound. The reason I have not posted is I am in the most teribble pain, and even Percocet won't help. I am so weak that I can...
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    Im ready to die...

    lhagsjr, I am just like you, I want to die. I too, pray to God every night to let me just die. The pain and knowing it will just get worse, leaves me hopeless. Conrad
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    Pride Of The Yankees

    Hi rcharlton, I saw the movie last night too. That x-ray thing put me off quite a bit. I didn't think when he fell off the chair, that that was very realist. The Bow Tie was good, but he had no Bulbar symptoms, and he was still able to walk without any problem. Agree with you that I lost a...
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    Poping and Cracking joints

    Hi Everyone, I saw the University hospital's top Neurologist, yesterday. He was the worst Neuo I have ever been to. He spent about 1/2 hour with me, and wouldn't even answer some of my questions. I asked about my popping joints, and he just gave me a stared look. He didn't even check for my...
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    Poping and Cracking joints

    After seeing two GP's, and two Neurologists, two times each, I wanted another opinion. So, I made an appointment with a Neurologist at University Hospital, for the 3rd of July. They take me in, and all I get to see is nurse practitioner! He has me take my shirt off, and looks for atrophy. I've...
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    Poping and Cracking joints

    Hi BWk, That's very interesting to hear. My right knee pops every time I stand up. I also have popping in my neck, shoulders, and other joints. I never had this happen before my symptoms started. I'm going to see my Neurologist next Tuesday, and make sure I tell him about this. Thanks to...
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    Poping and Cracking joints

    Does anyone with ALS notice that their joints pop and crack a lot more than they did before the onset of the disease? Conrad
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    For Those Who Can Still Walk

    Hi Capt Al, I'm sorry to hear that your arm and side muscles are getting weaker. My arms are getting stiff and heavy, but not as bad as my legs. We all do seem to progress in a unique way. God Bless Conrad
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    For Those Who Can Still Walk

    Hi John, Well, I guess they don't feel like 200 pounds, but I can remember when I would carry my old girlfriend on my back (she weighted around 110 pounds), and that it was easier to walk with her on my back, than it is to just walk now. I can notice that my legs are feeling heavier as time...
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    For Those Who Can Still Walk

    Hi Annmarie, Thanks for your continued concern for me. I too, am stiff all over, even when I move my forehead muscles. I have seen 7 doctors (2 Neurologists), and they still can't diagnose me. I'm going to see another doctor on the 20th of June, and I'm sure he will make an appointment for me...
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    For Those Who Can Still Walk

    I haven't been diagnosed yet, but when I walk, my legs feel like they weigh 200 pounds. Does anyone that has ALS, and can still walk, have the same heavy and stiff feeling in their legs? Conrad
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