Recent content by vafords22302

Nikki - I thought the same thing but the clinic was under the impression that was no longer the case. Guess we'll find out as my husband is only 53.

ISO some medicare help here. My husband is newly diagnosed and being seen at the John Hopkins Clinic. At our appointment last week, it was suggested we go ahead and get the medicare paperwork in and started. My husband is very early stages and only has some weakening in his hands and arms...

Who are you seeing at Hopkins and when? We have our first appt there next week for a second opinion. All the waiting is hard. Would love to hear your experience if you've already gone.

Re: Fiance' diagnosed last week Nikki - have you experienced any side affects of riluzole? Is there anything special diet wise you have to follow on this drug? Thanks!

We are seeing Dr Maragakis. Any feedback? Also, on second opinion visits, will they redo a lot of tests while we are there and will we have an opinion before we leave? Trying to wrap my head around what to expect. Thank you!

Nikki - not sure who we are seeing. Will check tonight and get back to you. We are overwhelmed right now obviously. We have a million questions but not sure where to start. My husband only has symptoms in both hands (atrophy of his thumbs). No leg issues, breathing, swallowing, etc. Any...

My husband was recently diagnosed with ALS after a battery of tests from a referred Neurologists who suggest we get a second opinion. In the DC area we have John Hopkins, Georgetown and George Washington hospitals to choose from - all who have ALS clinics. We have appointments at both Hopkins...