Recent content by Uptown

  1. U

    Just Dropping some Love by

    I saw that. The last communication with Ms Pie she was getting started on stacked breathing. Ottawa girl messaged me checking in. She told me Carlos was on another site now. I hope he is well. There's so many of you that did so much for me and I'm forever grateful. I promised I would do things...
  2. U

    Just Dropping some Love by

    With all the ice bucket stuff going on I cant stop thinking of y'all. I quit hanging out here because I don't have ALS. I used all the tips and tricks y'all gave me to be able to breathe and do so many things. I have some rough times but generally my worst day doesn't come close to what any one...
  3. U

    Ottawagirl has left us

    I stopped by for a second and saw this. I am deeply saddened to hear the news.
  4. U

    Muscle twitching, spasms, pain, weakness,, als? Please help

    Cara, Your dysutonomia and POTS can be associated with the vagus nerve. Not a lot can be done but I have found some neurological chiropractors that have done miracles with me. They address the pain and eliminate it. The technique is called Active Release Technique. You can search for it and...
  5. U

    Symptoms not going away

    Insettled5, Find medical professionals to help. It does no good to panic and ask people if you have something you read about. Get the diagnosis from someone qualified. You deserve it. I have lost 40%-50% of all the muscles in my body and the pain was unbearable for many years. However, I am...
  6. U

    No Diagnosis yet Confused?

    Why can't you choose something else and chase that for a while? Your primary complaint is pain yet you refuse to address that. Chronic pain will present as neurological issues and add on worry about the other things and it will worsen. Thyroid, lumbar spine issues will do all you say. Find a...
  7. U

    Doctor thinks I have als?

    What were the values Jeff? Suggestion: avoid Dr. Google and the Internet until AFTER your appt Aug 26. There is nothing left to do until then. Enjoy every day as this is truly a free period for you should, God forbid, you get the worst possible diagnosis. Every hour wasted in worry will never...
  8. U

    worried about gagging and weight loss

    You can use the iSwallow app and try all the exercises. If one is particularly hard focus on it and do it gradually up to 10 times 3-5 times a day. Anxiety can cause all this as well as not eating well, not drinking enough water, cervical spine issues can also contribute to all the swallowing...
  9. U

    Blood tests and spinal tap

    It is a test for an enzyme that controls blood pressure. Low ALT is a sign of body wasting while elevated ALT is indicative of a liver not functioning correctly. ALT can also increase from muscle inflammation after a workout or from weakened muscles also. If you have lactic acid build up type...
  10. U

    Blood tests and spinal tap

    Nothing left. I have had peroneal nerve issues for 20 years and have found someone that can treat it. When you are ready to get up and do something about this let me know. I will direct you where to go to fix it all. I doubt that's what you want to hear.
  11. U

    Have To Leave Forum

    When I was on hospice last fall whenever there was an issue they googled and my diagnosis popped up from here and they were reading posts back to me until I told them it was me. I was surprised.
  12. U

    ALS Early onset?

    Siam, have you had liver function blood tests lately. Particularly ALT. If it is single digits it explains all your symptoms.
  13. U

    I need help please

    Sometimes you have to choose your poison. You either do what the doctor says or fin another one. Not many other choices unfortunately.
  14. U

    Medicare changes

    Thank you! I read it and I still don't see Congress reducing benefits. Money has been borrowed and reallocated for many years and now there is more retirement the funds are extremely low. Assuming disability and retirement go up as the boomers age, it may require borrowing t interest to pay...
  15. U

    Doctor thinks I have als?

    Spine problems definitely can cause fasciculations just as they can cause muscle spasticity. Many upper motor neuron deficits present the same as spinal cord injuries. Any reduction in blood flow or nerve impingement can cause atrophy. Keep diligent with follow ups while filling life up with...
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