Have a look here :
[URL="https://alsnewstoday.com/2016/06/22/20160621als-patients-blood-inflammatory-markers-correlate-with-disease-severity-study-says/"]https://alsnewstoday.com/2016/06/22/20160621als-patients-blood-inflammatory-markers-correlate-with-disease-severity-study-says/[/U
Udo
https://www.researchgate.net/publication/232085333_Can_inspiratory_muscle_training_increase_survival_in_early-affected_amyotrophic_lateral_sclerosis_patients
Here comes hopefully the link.
Udo
Very interresting, can't you cpoy and paste the content to google translator ?
If these pages are scanned, you might try to the rtf format, as the content is better to copy and paste it.
Udo
I asume that these pO2 val
ues have been measured during daytime ,
values during nightime below 90% should be worried..
When she did get the pCO2 measured from the arterical blood and what was the % ?
Udo
I must protest at some comments here. My decline was 1.3 ALSFR points per month over 2 years. Since starting this drug I am stable. My decline has completely stopped. Due to untrue SCAM headlines, my drug supply will end due to lack of funding.
A moderator comment: this post belongs in Rants...
I use the Eye X from Tobii, and I am totally satisfied .
Beside from the Hardware requirements ( USB 3, at least Intel I5 )
and using the freeware Optikey, a great program with endless adjustments in the mangement console, you can realize for less then 200 bucks.
Udo
By chance I found the following study:
Creatine kinase enzyme level correlates positively with serum creatinine and lean body mass, and is a prognostic factor for survival in amyotrophic lateral sclerosis - Rafiq - 2016 - European Journal of Neurology - Wiley Online Library
According to this...
I 've got my one with a record function, where it is possible to record my oxidimeter values during the night.
They say that you really can use this values instead of the actual measured one during daytime.
And indeed my O2 % was during the night 2% less then during daytime.
But you can also see...
I understand that the EYE-X is the cheaper and very accurate system.
I prefer to use the freeware OptiKey instead of any Tobii software.
Very professional piece of software with flexible settings.
You might give it a try.
Udo
Here is an update information from today:
In ALS, Astrocytes Use Ion Pump to Blast Motor Neurons | ALZFORUM
It ain't gonna be that fast (as to be expected).
Udo