Recent content by Tx Daddy's Girl

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    I'm okay - one day at a time, I guess. I want to visit more often but it's hard because I get...

    I'm okay - one day at a time, I guess. I want to visit more often but it's hard because I get upset every time. I just changed jobs and I'm working in the hospice field and hoping I can bring some relief to families that are suffering. I'm not prepared for the holidays without my dad but I...
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    Question about disease progression

    My dad had discomfort and pain in the beginning and horrible pain in the end. He was in the bed for 6 months due to a fall. Hospice helped but dad didn't want to be out of it either so he dealt with a lot, it would move from side to side, his legs, his elbows, his arms. Morphine and methadone...
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    How do you get to Acceptance?

    I know I'm late to the game but as others have said you will find your peace. My dad had 13 months. This forum is great, it's hard to come to after dad's passing but like Atsugi said, ALS is always with me. For me, I never had acceptance I don't think, I still haven't. We played the...
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    Cholesterol and ALS

    I'll never take statins and my family has familial high cholesterol so my dad was on them for years. I actually know a drug rep who speaks out against them now and the harm they cause. Cholesterol protects our brains
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    i give up

    My father had a similar progression as we were told ALSin April but diagnosed I. June and by November and December I questioned why God would allow the suffering. My dad was ready and it was hard to hear it but I wish he'd have gone then instead of 5 months later. When dad died it was such a...
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    Question on how progression works.

    Yep, dad was walking okay but leaned down to pick something and fell - he had a subdural hematoma and never got out of bed and died 5 months later. I think we would've had more good times, maybe another year, had he not fallen. It's hard not to wonder because his power chair was supposed to be...
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    The Stem Cell Cure to ALS

    Re: Do you have Bulbar/ALS or Cervical Spondlyotic Myelopathy? My dad has spondylosis at c2-c3 and said he started having swallowing issues after, that he had to research himself how to swallow. We thought it was because they went thru the neck but he was diagnosed with ALS 2 years later but...
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    I hate ...

    This was a hard lesson to learn, it's human nature to want to help but I know my dad wanted to do it himself too.
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    I hate ...

    Ah, yes, the day the hot dogs ended - my dad and I love chili dogs and had them on my birthday weekend last year at the end of October and he couldn't cut them anymore, he was so upset and it broke my heart. I haven't had one since - I can't.
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    ALS update topic on Aug. 27th 700 Club tv show

    I'm sure it will be something against stem cells. Look, I don't like abortion but the way I see it as people are going to have them and if something good can come of it, say like curing a disease, then why not? Besides, to my knowledge, all the lines tested for ALS are not fetal stem cells...
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    Things I wish I had done ...

    My dad grew up so poor so he saved everything. He left my mother with tons of money. It kills me they never get to enjoy it together.
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    I hate ...

    I hate that I dont have my daddy. Even broken, I still could feel him, smell him. As selfish as it is, I still want him back.
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    Thanks - its tough coming back

    Thanks - its tough coming back
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    God saw you getting tired,

    So sorry for your loss Linda - the only words are it just sucks. We do t want them back with the disease but we want them back. I'm still having a very hard time with my dad loss that it hurts coming back to these forums. I too took a vacation and it did help, it was relaxing. I hope yours is...
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    he didn't suffer

    Wow, how fortunate - that he had such a quick go of it. So sorry for your loss.
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