Recent content by tworoadsdiverge

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    Thank you for all your help my friend, best of wishes to you. Hope to return with good news.

    Thank you for all your help my friend, best of wishes to you. Hope to return with good news.
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Thank you for your response. I totally understand, and I realize this is not a place for me to be constantly inquiring about this. I’m being a total hypocrite but my anxiety has just spiked after googling my new symptoms and it would be amazing if I could just run them past you guys. As I...
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Laurie, I forgot to thank you for your response last time but thanks so much for all of your help. Coming back to report some new symptoms after being anxiety free for past month until today. Firstly, right shoulder pain has worsened and there is really no explanation. I have a strange...
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Have had a wide collection of new symptoms. Slight imbalance, constant awakenings at night (I usually sleep very soundly), fasciculations on the sole of my right foot, burning sensation in the palm of my right hand where the weakness was. I got an EMG today though with a neuromuscular...
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    How are you doing? Another young person with fears of ALS here.

    How are you doing? Another young person with fears of ALS here.
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Whew, just coming back here before my EMG in about 2 weeks to report some new findings. I am now able to straighten my pointer finger normally, as I showed in the picture before I was unable. My hand fasciculations have decreased majorly. But, I have some new symptoms. My big toes have pins and...
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Right, well he said I have some sort of benign joint hyper mobility disorder which could’ve caused me problems. He’s a physiotherapist I think professionally but he says he’s seen weird things happen all the time to his patients. For the 2.5 hours he was doing all sorts of stretching tests and...
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Hey just following up here. I was tested by an osteopath/PT who seemed extremely knowledgeable and he said all my reflexes were normal, which is very good. He thinks it makes sense my calves fasciculate because of my back injury. He agrees that twitches I feel all over and the concentrated...
  9. 1FB3901B-E41C-455E-A5AB-459AB2D48154.jpeg

    1FB3901B-E41C-455E-A5AB-459AB2D48154.jpeg

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    17 and suspect JALS, apologies for invading this forum but am struggling

    Yes I am definitely reconsidering. My hand has a feeling now almost like it’s cold and I’m losing mobility. Not literally cold but similar to when you are cold and you can’t move your hand freely. This is bad. Definite weakness and failure happening.
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Coming back for some help after I noticed actual weakness yesterday in my pinching muscle of my pointer finger and thumb. Yesterday, I was suddenly unable to straighten my pointer finger and align it with the rest of my fingers to make “prayer hands”. Or if you know how you straighten your...
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Totally. This neurologist is relatively new and hasn’t really maintained contact with me at all. Have been trying to let her know my symptoms are progressing but she is not responsive. The strange thing with this tingling sensation is that it starts in my shoulders, yet the MRI showed no pinched...
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Hello - Just following up in anxiety as my neuro has not responded to my calls for the last week. I think that switching to an adult neurologist rather than a pediatric one wibe the best bet for me as pediatric neurologists don’t typically deal with this type of thing. Been crazy anxious for...
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    17 and suspect JALS, apologies for invading this forum but am struggling

    Thank you for your quick response. I will definitely make a list now that you mention it, as in my last appointment I forgot to mention a few symptoms and ask the big ALS question, which I regretted afterward. Your reassurance will definitely help me sleep better tonight. Thank you, and will...
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    17 and suspect JALS, apologies for invading this forum but am struggling

    I’d like to start off by apologizing for coming into this community to seek help rather than offer support. I’m glad we live in a day and age where such a thing exists on the internet for all these amazing people to connect, and I feel intrusive posting this as I haven’t been diagnosed. My...
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