Twinsmom
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  • hey melody :) just dropin in to say hi! hope your doing well and if you get a chance send me your e-mail. i still can't send private messages on here :)
    I'm so happy to hear from you :) and yes it was an awesome and unforgetable trip w/ mom and bro. my heart is really..........broken. i've lost about 25lbs since her dx and about 2 weeks ago weeks i had a stomache flu and today my fever has finally broke from some kind of flu that started mondaywhile i was working........i think my stress level/sadness has weakened my immune system.......i haven't been sick like this in years. I still am holding on to hope but i'm being overwhelmed by all the other feelings. I'm very excited about our walk we are doing. mom's loosing her speach some days are good and some not but she's staying very positive.......which is keeping me going :)
    Hi melody! it's a been a while .....just thought i'd check in and say hi! did i get to tell you my brother and i got to take my mom to nyc for a week? we had an amazing time that i will cherish forever :) and in about a month i have a team set up for an ALS walk :) how has your summer been?
    Melody, thank you--you're very sweet. It was taken last week, Friday, on one of the very few pretty days we've had, when I could get outside. Being out in nice weather was such a joy. Wanted to add: I'd suggested to IrisMarie that we sit in halter dresses "in the garden" (just fooling around), but she begged for a picture, and this was "it". I have very few pictures of me--hate to have them taken, usually look like a ninety year old; haggard. But in this one I was so happy to get outside and relaxed.

    How are YOU? I see your name up in the "Do I have ALS" area from time to time. I know you understand a lot and are very helpful. I tend to be a nincompoop there, as there is so much beyond my experience and understanding.
    TM=Twinsmom. I figured that's why you changed your prior name.(I thought it was your real name).
    Maybe I'm being el stupido, though!
    My new name for you is TM cause I know now you want your privacy.Things are getting worse for me as far as stress, but I guess that's no different for anybody.I have been trying to exercise to get rid of the sress,mainly(as difficult asi it is with no gastroc and heel drop.)The only real difference in this last EMG was I lost my H-reflex completely.Neurologist wrote no evidence of widespread motor neuron disease.I guess the widespread is a word I wished they had left out.DX S1 nerve root dysfunction which he says cannot be fixed.
    They act a little baffled,but I think he's just waiting for time to pass to see what happens next,and gather enough information for a more definitive dx.I'm really happy for your positive news about being further away from ALS dx.I'll keep checking up on your updated results.StayClose
    Melody, thanks for checking in - things are on an even keel for the moment. I just visited the After 5 Forum Pub and dumped on those good folks.... I may not be welcomed back! I am getting ready to sit down for dinner and give thanks for all I have rather than worrying about the future. Feel certain "this too shall pass". :)

    Diane
    Hi Melody. I do come back to the forum from time to time just to see what's happening. I am adjusting to the loss of my dad as best as can be expected I guess. I get incredibly sad sometimes and never know when something will trigger tears. That's just the way it goes, you know? My mom won't let on as to how she is really doing but she is keeping busy and has someplace to go almost every day. She said she has finally started to get widow's benefits from the government/VA. How have YOU been?

    Debbie
    Melody,PM me and let me know what if anything he is able to do.You can figure it out yourself maybe.That's what I'm trying to do.or now starting to do.
    Melody, I don't know if I told you yet, but I do not have ALS. He is saying it is mysterious because my gastroc keeps denervating. I'm glad but still skeptical. I haven't received full results yet. Let me know how I can help you with any of your altruistic endeavorsBestLove
    Melody,Just wanted to say Hi. It has been too long since we last touched base. I hope your husband is comfortable, and don't have too much doubt you are meeting all the challenges life brings to you with great fortitude.You are always in my prayers. I am going for my third EMG tomorrow, but expect my answers to be nil.Let me know if I can help you in anyway.Where do I need to vote?Bestlove
    Melody,
    I have been working all Week's on every angle I can to get votes.. Thank you for doing this, I am so passionate about what Stu does, he is a hero.. Let this only be the beginning, I am here for anything to help in the future..
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