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  • Hi True grit and welcome to this forum. I hope you find the support here as fantastic as I have. I just wanted to make a quick comment on your last post in the DIHALS forum. You said that ALS starts in the extremities but that isn't always the case. My husband is bulbar onset, which means it started with his tongue, so his early symptoms were slurring and trouble drinking liquids. I didn't want to mention it on the thread as the person who started the thread doesn't need any encouraging in believing they have this disease, so I thought I would just mention it here.

    Again welcome here, I look forward to getting to know you as we battle together. Tillie
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