Recent content by Trixie80

I sleep on a medical grade sheepskin, it's great as long as there is no wrinkles in my pj's or sheet

put a towel on the seat and once you are seated have someone pull it back

thanks for the confidence boost. I have no doubt she can help me,

i met with a great careaide today who i would like to hire but I have a slight concern about her height, she is 4'9". II worry she will have a hard time getting me in and out of bed and putting my hoyer sling on. My other careaide is quite tall, 5'10",so the way we do things might be hard for...

i eat avacados, boost pudding, lost of sauces, butter, cream and full fat everything. I also puree sweet potatoes with butter, cauliflower with cream cheese and that makes it easier for me to get more food in me easier so I can use my energy to eat other yummy foods. I eat mayo on everything...

me too. I am very sensitive to touch and my feet and legs are almost always cold but the rest of me is warm.

now that summer is here, i am trying to use my eyegaze computer outside. The glare from the sun makes it impossible for it to read my eyes unless I am completely in the shade. does anyone have any suggestions?

heres my thoughts. i am currently paralyzed from the neck down and have gone through a lot of different stages of bathroom problems i started out with a stand alone grab bar to use to push myself up off the toilet, then went to a seat riser with arms. Now I use a lift and tilting shower chair...

thanks I will try more detailed instructions and pictures.

I'm wondering if anyone has any tips, advice on training new caregivers. I am paralyzed from the neck down and use an eyegaze computer to communicate. The problem i have is communicating when I don't have my computer, ie. Going to the washroom and showering, and getting in and out of bed...

when I was diagnosed my mri had "white spots". Sorry I can't remember exactly what the terminology was, but the mri notes did say"images suggest als if there was clinical weakness " which there was in my right foot at the time.

haha thanks. I'll try that

thanks for writing that out. I have tried it a couple times now and every time we pull my pants up over my bum while hanging in the sling, step10,my pants give me a huge weggie. Do you have any other tips. much appreciated

when I shake and think I'm cold but am not cold i use a weighed blanket and that helps. and like jethro mine usually happens at night when it happens in my jaw my toung gets caught and I can't open it up for a few seconds.

that is all I do, have people wash their hands . I have a reminder sign on my front door to wash your hands as soon as you come in. I also have my caregivers wipe down my equipment daily, where they touch stuff regularly.