Recent content by tracyliz

I LOVE LOVE LOVE the pool! Can't go now due to COVID closures, but prior to that I went once a week for 45 minutes of therapy, and would have gone every day if I could. The pool I use isn't mineral water but it's a therapy pool so warmer, which is important to me because I don't do well with...

Hi James, used the "like" button to like your intro, but of course sorry to hear the news. I was diagnosed with PLS for quite a while, but last EMG picked up LMN involvement in several areas so they changed the diagnosis from PLS to ALS. (I'm at the scooter stage.) I'm a Vet too--as some...

...and to your point, responding to an inquiry didn't necessarily result in a favorable answer to the citizen once the research was done; calling a congressperson doesn't mean problem solved. So again, only as a last resort in a mishandled case after all due diligence is done. And a "no" or...

The thought didn't occur to me to call a congressperson, I don't think I'm anywhere near that, as it sounds like you've ascertained. But I'm not sure I agree with you about the wisdom of doing so if circumstances warrant. After I retired from the service I did some time as a DoD contractor and...

And the PS....I don't remember where I found the big studies that have come out every year or so, maybe someone else has the link. Sometimes it's hard to find them in places you don't have to pay for them. But here is a link to some of the more recent research articles on the subject...

The last part of your question was about studies. Congress ordered a slew of them, not just one. Several are published, some ongoing. The findings for many of the neuro conditions have been hit and miss imo depending on which study one reads.

As far as Gulf War Illness, I don't think there really is such a thing. Instead, there are a lot of vets that came back that have an unusually high rate of a variety of symptoms, and nobody knows why. So they recognized that this is a statistical truth, and that these vets need treatment, and...

I'm in the Agent Orange Registry. It's kind of a goofy thing and I wish they'd just change the name to "environmental exposure" database. I think they just realized that they already had a tool from Vietnam that could be used for Gulf War exposures and there way no point in creating another...

Hi, this is probably the wrong place to post this, but I don't know where to put it and am comfortable in the vets threads. :) I am working on estate planning, not because I am in my end game, but because everyone should, incase they are hit by a bus. I apologize that this is a sensitive...

Thanks Clearwater! I filed an "intent to file" with ebenefits back in Dec, and if I understand it correctly they will pay retroactively back to that date. (I started it then, before realizing I might be making a mistake to file by myself.) It was also questionable in my mind at the time...

Mike, Ha! Love it. Yep, I'll be dishing out full body hugs to all my friends on this one I think. I'll also be taking your good advice on all three points...thanks for the solid insight!

Good point Dave, thanks. I initially met him in person, but you're right, it is time for me to go high-five him again. It is awesome that your guy filed the claim the first day you met! And is helpful info, as I don't have a handle on how long it takes. He does have all of my records and...

Thanks Laurie, good to hear. My VSO seemed to feel the other way, (slow roll the diagnosis), but your advice is more in line with my thoughts, particularly in light of some of these cases, as you point out. Many thanks!

Hey Sille, My neurologist is suggesting I get the surgery for a baclofen pump, so I was reading up on the side effects of baclofen. (I currently take it, but have reservations about losing control of the dosage.) When reading the side effects, there were a bunch of rare side effects that...

Hi Clearwater, Perhaps it wasn't intentional, but that came across pretty mean. For as the bio, there's no choice for "not yet diagnosed". When registering, the instructions on the site says to leave all 0000s for the date if one isn't yet diagnosed, which is exactly what I did. Sorry if you...