Recent content by Tractor Boy

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    PLS Forum Default

    Hi Folks, this may seem like a silly question since I'm tech challenged, but HOW DO I SET UP THIS PAGE AS MY DEFAULT PAGE? I had it set up before, but I did a software update on my Android tablet and lost a bunch of shortcuts and apps. Now I'm struggling to set this PLS page as my opening...
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    Clinic Update

    Hey Bill! Most definitely the same club. My balance is zero, zilch, notta...so I'm giving up using a walker (while my PWC is charging) for night time bathroom runs. I'm still able to stand and transfer but gotta be holding on to something solid for balance. Fiona and Bill, are your voices...
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    Medtronic Baclofen Pump

    Lauren (love the name Lauren), now you have me wanting the pump. I can't say I have any adverse side effects from oral Baclofen. I think I'll see about a getting a trial at my next Clinic visit in Oct, but it still seems pretty invasive though (to me). Thanks for making us aware there are...
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    Clinic Update

    Bill, I believe I am one of your 8 acquaintances with bulbar onset PLS, aren't I? Started 8 years ago with occasional slurred speech, people thought I'd been drinking or had a stroke. Voice got very raspy within 3-4 years. ENT found nothing. 4-5 years ago started funny limp, falling over own...
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    Medtronic Baclofen Pump

    Lauren, glad the pump is working out for you! I've been thinking about it and I know it would do me good, but the pictures Dr. Google shows freak me out totally. Is it noticeable? Is it uncomfortable? Does it hurt? Also, I see no easy way to decipher what spasticity feels like to different...
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    Clinic Update

    Thanks for all the useful replies regarding our similar journeys. Glad not to feel alone!
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    Clinic Update

    Fiona, sorry for kinda hijacking your post! But it appears yourself, Billbell52, Old Dog and I are all on the same (bumpy) ride. Although we are unfortunate, it seems we all (at least) share hope our PLS doesn't morf into "the Big A." A rare breed indeed. Laurie is brutally honest, per...
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    Clinic Update

    Uhmmmm...OK! I'm going to ask for an EMG then, right?
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    Clinic Update

    Well, I sure hope you guys are right. My symptoms are getting worse in my eyes. I've lost my ability to use a walker and my voice is totally toast now. However, I had another swallow test and aced it! I had a bad one 3 years ago. I think that had something to do with the Vitalstim my ST used on...
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    Clinic Update

    Hey Fiona...my neuros don't seem to think I need an EMG (haven't had one in 2 years). After reading your post, I think I will insist on one. At my last ALS Clinic visit in early April, they said they'd like to see me every 6 months rather than every 3. What do you make of that? TB
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    Tremors

    Fiona, you were so very close. Clonus was not a Roman Emperor but he was a Greek Jerk! That explains a lot. I hate this so bad, just wish I could wake up and feel normal again! TB
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    Tremors

    Captain: "Scotty, take us to warp speed or we will be sucked into the atmosphere of Clonus"! Scotty: "Aye aye copt'n" Mr Spock: "Is not Clonus the home planet of Mork"? Captain: "No you silly Vulcan... Mork is from Ork"! Scotty: "Copt'n, she can't take it, she's breaking up"...
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    Tremors

    Welp! You guys have convinced me it's Clonus. I always thought it affected only the feet, guess I was wrong. How the heck did this symptom get named Clonus? Sounds like some distant planet in a cheap outer space film, doesn't it? Lol I also now know why my spasticity prone legs'...
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    Tremors

    Mike (Atsugi), I get that creepy crawly (achey) sensation in my legs at night also. It's a killer. Sometimes my right knee feels like it's on fire. I thought that was spasticity(?). TB
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    Tremors

    Hi Everyone! It's been pretty quiet around here lately, so here we go! I've been having more and more tremors (I think they're called tremors anyway). It's when my hands, arms or legs shake uncontrollably in an involuntary manner. When it happens, it is so rapid that I couldn't duplicate...
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