Recent content by TRACEY'S MOM

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    My Beloved Is Free Now

    Am so sorry for your loss.
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    Nail beds

    My daughter's nail beds practically disappeared. Noticed that they were diminishing about a year ago. In April of this year, the only one I could easily see was on her right thumb. (ALS started on her left side). Heard something about breathing and nail beds, but never from pulmonary doc.
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    It Won't Be Long Now

    My heart goes out to you.
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    Hospice - what does he need first?

    Definitely ask hospice, but ask your local ALS group as well. Tracey had a shower chair and other helpful devices that were loaned from the ALS "closet".
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    My daughter passed

    I may have only had the opportunity to post on this site once or twice before my daughter's battle escalated. Tracey was in the loving care of Hospice when she died on Oct 11th at 11 a.m. She was only 40. Her husband George and I never left her while she was on her journey in the hospice...
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    shivering when yawning

    My daughter shivers when she yawns. Also, teeth chatter easily when she gets cold.
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    It's getting harder

    Tracey was diagnosed in Oct 2008. But in the past couple of months, her deterioration has increased rapidly. Her ALS started in her left foot and has progressed so much that she now has a hard time speaking. It's so hard to see her in pain and her anxiety level is off the charts. She takes meds...
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    New? Introduce Yourself - Say Hello

    Actually, ran out of characters! Tracey always has a smile when she sees you. She loves her family more than anything. She still runs her house, making sure the kids lives are "normal". The grandkids are great and her husband is outstanding.
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    New? Introduce Yourself - Say Hello

    Hello, my daughter Tracey has ALS, Oct 2008. Tracey is my oldest child, she is married to George (wonderful man) and has three kids age 14, 11 and 9. Wish she was eligible for a trial.
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    My darling daughter has ALS. She was diagnosed in Oct. 2008. Everyone of us here knows the exact...

    My darling daughter has ALS. She was diagnosed in Oct. 2008. Everyone of us here knows the exact date of the diagnosis and how we felt. Tracey is my oldest child and a light in my life. She has a wonderful husband named George and three children, two boys and a girl. Tracey is only 40. For a...
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    New? Introduce Yourself - Say Hello

    Have been reading this site on and off for a while. My beautiful daughter was diagnosed in Oct 2008. She's a wonderful mother to three children, a loving wife and a terrific daughter. So badly want a cure before we run out of time.
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