Recent content by tphelps

I just have $1000 to research which is a big check. I still need to find out whats wrong woth me but I won't forget about this so that's not the end of it. ALS is a nightmare you are a brave person and we need to do everything we can to kill it for good.

Emg was normal. He stuck the needle in 15 different places and then told me I was wasting his time in a funny way. No word yet on additional blood work but its safe to say I don't have als. Thanks to all for the help and I will keep you in my thoughts. I can't imagine what you are going through.

Emg got moved up to tomorrow. Ok guys wish me luck. Thank you all again.

Neuro this morning did another physical examination, told me that the fasciculations on my tongue were actually just natural tongue quivers. That took him about five seconds. Test scheduled on Monday include EMG / NCT. He was worried about the fasciculations but annoyingly when I was there he...

Thanks for the time

For when you have time.... 1. Does the weakness proceed like arthritis? Like it's just a little more difficult / painful to do things like stand on your foot or is it just an on off switch. As in one day you can't open the door? 2. When you do exercise, even just walking around the block...

Thank you for the note. It certainly is a strange presentation but the fasciculations are scaring me especially in the tongue. I will keep looking, the EMG should be helpful I think .

Only other thing that is suggestive is that my tongue is vibrating like crazy. Just the tips and edges when I stick it far out of my mouth bit is definitely vibrating.

Thanks. The negative MRI pretty much eliminates MS. I was focused on MS as well. After any sort of physical exertion (I just took the dogs for a walk for example). My muscles once finished feel incredibly heavy...I can move them but my whole body feels heavy. After I rest a bit that will...

All, I wanted to share my story and solicit some thoughts as it relates to ALS and I appreciate all of you not just those that have to time to indulge me, I can't imagine what you are going through. I live in NYC, a 31 year old male. I have been difficult to diagnosis. Sometimes in February...