Recent content by Tonya

I am so sorry for your loss. The whole time i was reading your post i was crying for you but also for me because i can see me in the same place soon. You and your family are in thoughts and prayers. Stay strong and God will help you through this..My heart goes out to you. God Bless you

i am like the rest of the folks on here, i wish nobody in the world had the crappy disease, but i didn't think there was as many people affected with it. Not till i got on here did i realize their r more people with als. I hope your dad does ok. You and your family are in my thoughts and...

My daddy went to a sleep study to get an BiPaP machine, we were so excited that he would be able to get some sleep laying down. Well now they aren't going to give it to him because they say his lungs can't handle the pressure. Has anyone heard of this before? And I sure could use some advice on...

Hi Shh I know exactly how you feel, My father was diagnosed in Sept. and then when the regular doctors said thier wasn't alot they could do for him he started seeing the "QUACK" he has all the ivs with the miracle cure.....It took Daddy awhile to figure out it wasn't working. But not until he...

:confused: I am soooooooo aggravated.. I have been trying to get Daddy an appointment for a sleep study so he can get bipap, this has been going on for almost three weeks now, is it so much to ask for a doctor to fax orders for a test? I bet if it was their daddy that can't sleep laying down...

Hi Michelle, First let me say how sorry I am about your dad. I know how you feel, my dad was diagnosed in Sept. of last year. This disease totally turns your life upside down. If you have questions or just want to vent your feelings feel free to contact me. I didn't know alot...

gettin even A fifteen year-old boy came home with a new Chevrolet Avalanche and his parents began to yell and scream, "Where did you get that truck?!" He calmly told them, "I bought it today." "With what money?" demanded his parents. They knew what a Chevrolet Avalanche cost. "Well," said...

Hi Al, Until about 2 months ago my dad didn't talk like this but he has started going to an alternative quack and he knows nothing about an pipap machine, he just thinkshe is supposed to live in a chair because she says she can cure him,,I have never hated anyone but i almost hate...

I would like to know where to get one of these for my daddy, i told him about it and he says he will try anything.....We don't have a ALS clinic anywhere near us...And also the umm "Lady" he is seeing wants him to have the stem cell thingy..does anyone know if they have worked in any way

I have learned so much on here, like bipap machiness can help my dad a great deal conserding he can't sleep in bed cause if he lies flat he can't breathe, If he talks to much he can't catch his breath. I have talked to him till i am blue in the face and it doesn;t seen to help...He always has...

I have tried and tried to get him to go to a real Doctor. but he says se gives him hope..I think people like that will pay one of these days..If she could cure him i would think there would be no ALS....So a BIPAP is not a ventilator?

Hi Al, Thanks so much for ur help. I feel silly that i don't know these things. But Daddy doesn't really like to talk about this with me....Idon't even know if he knows about all this..Onceagain thanks Tonya

Hi Mike, What is a Bi-Pap machine? See Daddy is not going to any specialst. just what i call a quack...she says she can cure him and dad believes her......Please tell me what u can about this machine please.. He can't even lay flat anymore. he can say a few words then he has to catch his...

Rhonda, thanks for ur advice, all his pills are is vitmains. and i just don't think they r doing anything for him..I am at my wits end....i am not sure how to talk to dad cause like i said he is very private. But i do wantthe best for him...

I just recently got on this web site and so far have learned more than my dad has told me...There still are things i don't understand...like this test EMG..what is it...My dad is a very private person and feelslike if i need to know he will tell me..He is currently going to a all natural Doctor...