Recent content by tony2006

Yes,it was one time treatment include 3 months early 2013.So I went back to see my first neuro in April the following month and told him this stuff had really help me.He did check me and said I had no progresstions then referred me to UT Southwestern.Soon after I got the death sentence from the...

I am sorry it was May 2013.Also my latest EMG was done couple month back.Neuro said no conduction block so nothing support MMN.My new neuro is wonderful enough to want me to see dr Appel asap.Do you think it would be a waste of time?I am so tired to go any places now.

Thanks for your reply.That was the specialist I saw in May 2015 at Ut Southwestern.She told me to go home asking for more IVIG and also set me up for EMG test in June.That was when I was told that I have ALS after the needle was poke 2 places on my right arm.The specialist was not present in the...

Hello everyone, 2 years ago this month I was told by a group of trainees doc that I definitely have ALS at UT Southwestern in Dallas.Last month I was losing so much energy doctor at hospital get me a dose of IVIG for 3 days.I went home feeling so much better and start doing PT.Last week I lost...

Vicki, The NCV on me alone took 45 minutes and very uncomfortable.Yes,i am terrify of needles but I did not feel that much painful at all.I think he did not put the needles deep into my muscles as you described.What disease do you have Vicki?

Thank you very much. I find out this forum has give me a great deal of comfort and provides lots of information for people like me.It's really help.

Thank you!I will look into it.

Thank you Vicki. So the accuracy of EMG test varies from each doctor?I have only one emg so far.This past Monday I ask my neuro to do me another EMG test but he's very reluctant and offer to do it the next time I see him in July.By the way it took him 1 hour and a half for my last emg and...

Is it possible two doctors perform EMG test result different outcome?

Thanks for your reply. So do you think this als expert will do all of the tests over again or he will diagnose me base on the results from my first neuro? Thank you

Hello Nighthawk, I am not really sure about the little strength to my right hand is from IVIG or from being accepting my illness.I was not able to turn door knobs as of 10 days ago.Now I can do it. I saw neuro this past Monday.H said I am about the same as of the last time I saw him however he...

Thank you all for your replies,advise and suggestions. I was in panic mode,stress,depress thinking that I can not be there for my wife and my children.That is why I am so down.....and I think my health goes down with it for the last few weeks.I feel my weakness is worst since diagnostic compare...

Hello everyone! First of all please excuse my writing.English is my second language so bear with me thanks. Went to a referral neurologist yesterday 02/12/13(don't think he is als specialist,my first neuro refer to him for second opinion).After 15 minutes physical examination,he spells out the...