tomby

Our son is 13 1/2. How are your children coping? Matthew is having a really hard time.

hey tomby i have to have a peg tube put in next week im not to fond of it my way usually dosent work right all the time so i guess i will leave it up to my nurologist.i hope all is well and thanks for the prayers and replys

Hi Tom,
How old are your children? Do any of them still live at home? How are you and your wife doing with this disease and the changes it brings? Enough questions... The "Dream House" is now the house next door, since my inability to get around in it made it impossible. We have and now live in the house where my husband, Phil, grew up, which was fairly easy for him to make necessary changes in for my use. LOL about the chickens! Nineteen have survived for three years and came to us as day-olds. They're spoiled rotten and love humans. I chose the breeds for their calm personalities. They have their own house and yards. Take care, Tom.

Good morning, tomby! I've sent you a friend request.
Ann

happy easter tomby and family i hope god grants you a wonderful day

Hi Good luck with the trial!! Does your wife post yet? We have a great bunch of CALS here. Lori

hi tomby had a good day i hope yours was good to stay strong and dont quit fighting

i hope your doing ok tomby im still here fighting the fight hoping one day a cure may take place. but i rely on god to see me through .stay strong and never quit fighting

hi tomby i know this illness we have seems to make us so emotional its wierd its like we have no control.hang in there friend im sure your son will do just fine .just keeping praying for him and take care of you your all in my prayers jeffp

hi tomby i hope all is going ok with you and the family.stay focused and never give up hope and leave the door open for god to enter in for help praying for ya jeffp

hi tomby i hope all is going ok for you and your family .your message to me brought a plesant feeling to my soul.isee you were just diagnosed so your early into to ,i really care deeply for people espspecialy when there suffering. i have my ups and down days but we have to remember it my have this illness but were no different than anyone else they dont know when there day is as we dont either.live life to the fullest while we still can ,show love and gratetude daily when i wake up god did his part know what am i going to do.hang in there tomboy and im going to ask to befriend you so we can fight this fight together

Welcome tomby! I have a son that is 13. How is your 13 year old coping? This forum is my lifeline. I sent you a friend request! hugs, Kay Marie

Welcome to the forum, sorry you have reason to be here! I am so glad you have put your trust in God! That is what makes it possible to endure this disease and it becomes even more important as the disease progresses. Blessings to you and your family!