Recent content by Tomannie11

I had my thyroid hormones levels checked and they were good. Dr said thyroid wasn't cause of my breathing troubles and also the nodules weren't large enough to press on trachea. I really don't feel I have symptoms consistant with PLS except bulbar,my muscles are physically strong, but 2 of my 3...

Well I'm back. Neuro called today left a whole lot of unanswered questions. Said MRI and cat scan emg and ncs. Were neg except there's abnormal signal on c2 and t2. There's no compression so there not causing my symptoms. Also have nodules in thyroid that need biopsied. I asked about the...

Final update. Had my MRI read today. No ALS MG or MS. So prob back to neck issue. Just wanted to post this to give hope to others who are in the waiting period and are sure like I was that they have ALS or had a Dr tell them they believed they had ALS. Once you hear that its hard to believe...

Just got back from EMG. Dr said my tests were normal and that I did not have ALS or mathenia gravis and that I'm told old to be getting MS. I asked about future possibilities because we all read the posts of ppl saying they had clean emg then bad ones later. He said frankly with as much weight...

Thank you. Much love to you all

The Dr just called me about my upcoming EMG today. He said they are only testing my arms. My Neuro noted hyperflexcia in my arms but when he tested my legs they were firmly against floor and didn't budge. I even mentioned that but he didn't redo or raise me higher. My primary Dr noted...

Oh good thank you for your quick reply. I wasnt sure if they would just show a bunch of numbers or an explanation. Thanks again

I have another question about upcoming Emg. I don't want to freak about abnormal results if they aren't ALS related. Since I have upper and lower reflexxia and possibly a neck injury, I am assuming my EMG will be abnormal because those conditions would also cause that I think. Is that correct...

I will post results as I get them. The neurologist is a Kaiser doctor that's all I know. Thanks for your response. Annie

Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...