Tokahfang

Tokahfang

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  • P
    I've been slowly adjusting my dosage of Tizanidine the past few weeks. I'm learning that I need a certain amount of spasticity. When I went up to 8 mg / day, my knees were very unstable and painful. Now I'm taking 2mg in the morning and 2mg more at night. Knee pain is basically gone, except my dr found a spur under my kneecap. He gave me a Rx for Tramadol for knee pain. I am back to walking on my treadmill (not going nuts with it) because all the laying around was making my back hurt. Legs feel heavy but not painful. This seems like a never ending ordeal and I'm only at 5 months. Don't know how you do it. I want a diagnosis but maybe it's better that I'm confusing them!
    O
    do you know most users online was nearly 6000- good lord becky i bet less than 10% are ill, that makes over 5000 people suffering als health anxiety in one day. thats a lot of counselling. a full time job shame you cant get paid - happy valentine take care margaretX
    T
    Thank You Tokahfang. You have been helpful :). I appreciate it. I think the reason I don't sound confident is because I didn't want anyone else in my house to hear I was Recording My Voice haha.I'm not confident in reading Presentations and out loud. So, just to clarify, no Nasalitty? Nothing like the Dysarthria sound?

    xxx
    P
    I'm sure it doesn't help that I do a LOT of walking for my job. I am thinking of switching to a desk job but even driving hurts my knees and shoulders. I don't want to give up. I don't have a definitive diagnosis yet (he said I do have a neuormuscular disease) and I really want one. This sounds stupid but a part of me feels that I need to "prove" that there really is something wrong with me. I have been in the same job 17 years and I would hate to leave it. My case has been so sudden. My condo has several levels. I want to sell it before I can't do stairs. I am still in a bit of shock, sorry for rambling.
    P
    Thank you very much for responding. You make perfect sense. I had NO joint pain until 4 months ago. The bad news is that I think that my joint pain is a combination of the UMN thing and my reaction to cipro, and doctors don't know how to stop the progression of cipro induced joint damage. I might be a unique case. My only guess is that the drug reaction sped along my neurological disorder. Four months ago I was running miles at a time, now my knees feel as if they're being twisted from the inside, no matter what position I put my legs in. My muscles have been tight my whole life - I was in a back brace for 5 years for scoliosis as a child. I had a good run of 40 years but now I feel like a bomb has hit me all at once.
    P
    Do you have a lot of joint pain? My story started only back in September. I had a reaction to an antibiotic (cipro) then all my symptoms started. I keep reading how "painless" this stuff is but my shoulders and knees are in almost constant excruciating pain. I don't know if it's because of weak muscles or cramps or my drug reaction. Doctors just say MND is painless. I know I have UMN disorder of some sort. The pain is horrible and I'm still working. Sorry my problems seem like nothing compared to what you go through.
    T
    After I posted them Videos to you last night, I found out I can move my Soft Palate if I try hard to say 'eeeh' and 'aah' e.t.c. so I don't know if that means there is slight weakness?

    xxx
    T
    Hi Tokahfang,

    Thank You for your reply. Have you seen my thread post about Bilateral Soft Palate Weakness? I can move my Soft Palate when I sort of Breathe/Whisper but I can't move it like everyone else's when I say the sounds. Here is a video of what I mean (I'm so sorry to show you the inside of my gob haha). This is the Breathe/Whisper http://www.youtube.com/watch?v=FPO-S4bP6yw&feature=youtu.be abd this is where I say the sounds http://www.youtube.com/watch?v=TDVXHDakJ_o&feature=youtu.be
    Does the Breathe/Whisper not use the same vocal chords that I must have weakness in to say the sounds?

    Thank You
    xxx
    T
    Hey Tokahfang,

    I have been reading on the site and read that you have throats spasms and throat cramps sometimes? Are these just a pain when you swallow? Or does it just cramp for a few seconds as a cramp would when relaxing?

    xxx
    S
    Yes I've heard MND cramping is usually pretty painful and severe, not at all what I'm feeling. I just wanted to make sure I wasn't confusing it with something else.
    S
    Ok, so in other words it is not reminiscent of anything you've experienced? I'm sorry to be annoying about this, I'm just trying to get worthwhile info.
    S
    Hi Beky,
    Thanks for your input on the thread I started. I have what may be a silly question. I have a fairly consistent cramping sensation in the proximal muscles of both shoulders. I say sensation because it rarely ever reaches a cramp, but it feel like its on the verge. It happens when I maximally contract and it feels like it has a hard time relaxing. Does this sound like benign cramping? I have no UMN signs on exam.
    Thanks again
    -Steve
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