hi my name is Toby and my wife Piper was initially dx with bulbar palsy. We are a ******* couple living in Joplin MO. and it took us over a year to actually get a diagnosis. We finally were sent to the Mayo Clinic for the dx. in May of this year. Piper was diagnosed with ALS at the Als clinic at KU in October. Still trying to figure everything out. I have been an RN for 43 years but have always done mental health nursing. This is uncharted territory for me but trying to learn day by day.