Recent content by tmarino

Hello, I thought I would like to give you all an update and once again thank all of you who have put up with me for close to 4 years. In July of 2007 I noticed a twitch in my tongue. I googled it and it came back ALS. Those thre little letters changed my life. My GP a personal friend said...

Hello everyone. I just wanted to let you know how things were going. As you most are aware back in March I went off the deep end. The twitch in the right front of my tongue that had started in July of 2007had moved to the top of my tongue and was quite painful. All of my fears of ALS came...

Would you be kind enough to PM. I have so questions that I would like to ask you Thank you

I am so happy for you. My wife says that I should see the top ALS guy. My Neuro said that if it would make me feel better and if I would indeed believe him he would give me a referral. My GP just sent me last week to a doctor who deals with muscles and who gave me a complete clinical he spent...

How did every thing go?

I cannot speak for everyone but the letters ALS strikes a fear in me like nothing in my life has. I came here looking for answers and yes reassurance that I might not have it. I recently got to speak with a Doctor who is considered to be one of the best. I won't go into how I did it here but...

I was talking to a friend of mine today regarding a person who had just passed away. I said the best thing you can say about a person was not what they had accomplished in life or what material things they had acquired. It was simple, say they were a good person. This seems like what every one...

Andy, thank you for you replying. What scaring the heck out of me is that a twitch is now on the top of my tongue. You have had the symptoms for over 3 years how have you manage to keep your sanity? Like I have said I have never question a Doctor before this.

Just when I think I got these fears under somewhat control something happens. Just a recap some 32 monts ao I developed a twitch on the front right side tip of my tongue. It would come and go. I could even make it do it. I went to both my doctor and the Neuro. They did all fo the test...

Hi, Suzanne I am wondering how you are doing? Also if you would like to talk

Suzanne, I have never replied to anyone here. I have only asked questions about the same thing Tongue twitching that started 29 months ago. I think I know what you are going through. Every time you feel a twitch or tingle in your tongue your heart races and you run to the mirror hoping that...

Hi Crystal. According to both the Nero and GP my tongue looks normal. The Nero did a MIR just to shut me up and found nothing six or seven months ago. My wife and him like to kid me and say they found nothing in my head including a brain. My last physical was maybe 6 months ago complete work...

Beth, thank you for your reply. I had come to terms with the twitching on the right side of my tongue. When the left side started to twitch it brought back all of fears. Like I said I should have never typed in tongue twitch on the Internet. What I had read that ALS is a progressive...

Crystal, I have been off it for about two months

Thank you Joelc. I wish that I could get some doctor to tell me exactly what is wrong. I know it sounds crazy but I can not get it out of my head. It has really scared me again when the twitch went to the other side of my tongue. My GP is a personal friend of me and has told me he is 100...