Recent content by Tkthiede

  1. Tkthiede

    Dance, Darcey, Dance!

    What a beautiful tribute to a life well lived. I’m glad you had the time to write it together, sharing laughter and joy. May beautiful memories bring you peace. Tammy
  2. Tkthiede

    Coughing at wake up

    We have a fire near here in Wyoming. I am having a terrible time with the smoke and ash. I have decreased lung function so I end up wearing my ventilator most of the day when the air quality is bad.
  3. Tkthiede

    Advice on ramps?

    We actually contracted with a mobility company to do ours. For every 1” in rise you need 1’ of ramp. One of my pieces of ramp is kind of steep and we’ve actually had issues with sliding down in snowy weather or not being able to get back up. Investigate well. Good luck. 😊 Tammy
  4. Tkthiede

    Mattress topper for hospital bed

    Thank you, Nona, Steve and Laurie. I can’t afford to start with a new mattress right now but I’ll start with the overlay and if that doesn’t work, try to get a mattress approved.
  5. Tkthiede

    Mattress topper for hospital bed

    What firmness would you all suggest I try in a latex topper?
  6. Tkthiede

    Mattress topper for hospital bed

    I received a hospital bed from someone and I tried to sleep in it. Worst night I’ve had in a long time! I’m able to still move around in the bed, though rolling is very difficult. I can’t get into my bedroom and my normal bed. I’m wondering if a mattress topper would help the hospital bed. I’ve...
  7. Tkthiede

    Butt Pillow

    Numotion is submitting the Roho cushion through Medicare and my supplemental. Not sure if they will cover but it's worth a try. They seem to think it will be covered. Fingers crossed! Tammy
  8. Tkthiede

    Once on Medicare, is it worth keeping cobra coverage?

    My COBRA stopped the day Medicare started. I did not realize this so I had a bunch of bills for that month. I would investigate further if I were you. Good luck. Tammy
  9. Tkthiede

    Slow progressing ALS. Where its led me to.

    I agree with the others about good counseling or therapy. It has allowed me a sense of freedom from my worries. My husband and I talk but sometimes you just need an impartial party to let go of your fears and sorrows. I started to have panic attacks from breathing difficulties. I had my low dose...
  10. Tkthiede

    Intro

    I’m sorry to see you here but there are very knowledgeable and kind folks here to answer your questions. As was said before, thank you for your service and all your sacrifice. Tammy
  11. Tkthiede

    How to mentaly and physicaly deal with losses

    Camille I totally understand your concerns. I still have some use of my hands so I do some drawing using adaptive aids. But my mainstays are reading and watching TV. I watch all the zoo and veterinary shows. I’m pretty sure I’m an expert now! 🤣
  12. Tkthiede

    Cristin's Ulf

    My sympathies to you and your family. May the happy memories you have bring you peace in this difficult time.
  13. Tkthiede

    (Not such a) long time follower, first time poster

    Welcome Rich! You’ve probably already figured this out, but the folks here are awesome. They share their experiences so we can have an easier time. Tammy
  14. Tkthiede

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Just checking in. Nothing exciting happening here and I’m happy about that! On my off weeks from Radicava infusion so I have more time at home. Wish I could get up and get to work sorting and cleaning. I don’t have any umph to even try to get things done. But I do enjoy going out on the porch...
  15. Tkthiede

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    I’ve had a wild month. Had to have surgery to put in my feeding tube. I’ve had gastric bypass and the feeding tube had to be put in the gastric remnant. Surgery went well but before I got out of the recovery room I ended up in respiratory failure. I spent some time in ICU and now I’m absolutely...
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