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  • You are not a terrible person. Not wanting dad to suffer is nothing but love. I lost my dad to Bulbar Palsy. I felt the same way. Watching my dad go from 240 to 100 in less then a year with a feeding tube. This disease is pure hell. Watching your loved one detierate to nothing. Very humbling.... When the dr's told my dad to order a skooter, he told them no, he would be gone by the time it came in. He died the following week, dad right again. It was so hard, the hardest thing is knowing that there is nothing we can do to fix it. Dad's were always the ones to fix things and now they can't & eighter can we. This disease is pure HELL. I totally understand where you are coming from. ......Stay strong. Just know God's plan is not always fair or pretty. Kinda makes you wonder what it is all about....
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