Recent content by Tj1974

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    Winelover49, Just dropping a note to see how you are. My Doc is now looking at autonomic testing...

    Winelover49, Just dropping a note to see how you are. My Doc is now looking at autonomic testing for me, equally scary as ALS. Hope you are well. v/r,
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    Update- Opinion about a Second Opinion

    Hello, I posted a few months ago regarding weakness in my legs and arms and shortness of breath. I have been seeen by two Neurologist, one was a university neuromuscular specialist, and I have had two EMGs. The bottom line is I don’t have ALS. The doctor said I may have, “fatigue but not...
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    Hello, cans you unlock my thread I started a few months ago? I would like to provide an update...

    Hello, cans you unlock my thread I started a few months ago? I would like to provide an update since I saw a neuromuscular specialist this wee week and had an second extension ERMG. Bottom line, I don’t have ALS, the specialist wants to test automatic functions.
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    Winelover 49, Your story is very similar to mine. My started with shortness of breath, then...

    Winelover 49, Your story is very similar to mine. My started with shortness of breath, then twitches and progressive weakness feelings in arm and legs. My legs are the worst, they shake as if they will calapse when I walk down more than 4 flights of steps. It’s been 11 months and no answers. I...
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    Opinion about a 2nd Opinion

    Nikki you are so kind. Thanks. I feel so weak minded and selfish getting encouragement from folks that are fighting this awful disease each and everyday. I pray for everyone afflicted by this disease everyday. Ill hold off posting again until the specialist visit. God bless.
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    Opinion about a 2nd Opinion

    After discussing the new symptoms, I went back to neurologist today and he is now referring me to neuromuscular specialist. He said he still doesn’t think it’s ALS but he can’t do much further for me. He told me to expect the neuromuscular specialist to repeat the EMG and possibly to even more...
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    Opinion about a 2nd Opinion

    Thanks I will try the sleeping apps to see if I need a sleep study. Good point on the entire body vs starting in one area and progressing. There is so much information about ALS on Dr Google discussing “progressive weakness” and “twitches”, I appreciate your expertise to give me some context...
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    Opinion about a 2nd Opinion

    Thanks Karen you are very kind to answer. The legs shaking going down the steps is really the most worrisome for me. It’s what sent me to the neurologist. Hard to believe an EMG and physical exam is all he needs to rule out “the bad stuff”, but then I haven’t been to medical school. I’ll head...
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    Opinion about a 2nd Opinion

    Hello, thank you for this forum and your thoughts about my situation. I pray there is a therapy for this awful illness soon for all effected by it. Sorr for the long post. I’m a 45 y/o male. Over the past 2 years I have noticed my running pace was slower in general with the same level of...
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