Recent content by Tirona

  1. Tirona

    Newly Diagnosed (Day 2). I have a daughter and pregnant wife. We are devastated. Need help.

    Scott, Very sorry to welcome you here but in the same time I’m glad you found this forum. I was diagnosed last August. Joining this community has changed the way I look at this horrible condition. The support of the members and the useful information I find here has been a huge help for me...
  2. Tirona

    New ALS fighter

    Finding this forum has helped me a lot. So many useful advices and so much support from the members. Yes a Celtic fan :). Thanks again.
  3. Tirona

    New ALS fighter

    I have already subscribed with CCALS and ALS Association. As I dig deeper I get to learn more things. Also I was assigned a nurse from MGH as my reference person who is very kind and answers my emails quick. I understand that I need to process all this new and sad situation which affects my...
  4. Tirona

    New ALS fighter

    Thank you Nikki J for your reply. I was followed by two very good neurologist. The second one is among the best for ALS @ MGH. I am just confused on how to proceed regarding planning ahead. Will meet my Doc next month and eventually will have a better understanding. Thanks again!
  5. Tirona

    New ALS fighter

    Hello everybody, I was diagnosed with ALS three weeks ago. I’m a male 47 yrs old who has always been very healthy. The worst health problem I have encountered in my life has been season flu once in every 6-7 years. My symptoms started in Nov 2019. Stiffness in both calves and heavy legs when...
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