Are you planning to return to Japan? Having some family nearby will be helpful. Do you have any support here in the US? We do live close we can meet up. I'm not working, so my schedule is pretty flexible. Jodi
Glad you will be seen Friday. Most likely will be seen by Dr.Goyal she the ALS guru there. Tuesday's are the ALS clinic days, those days you will see the DR, RT, social worker, clinical trial specialist if you chose to, PT and speech. I had repeated my nerve test, that the first neuro had done. They started me on the medication. Dr filled out the form for my handicap placard, when I was there. Are you still working? I'm not....I walk with a limp due to my footdrop, RLE. I have weakness left han with atrophy. It pretty much......sucks! We live close, so we should meet up. We can begin our journey with ALS......together.
Hi, I to was diagnosed with ALS. I'm seen at UCI, I really like the doctors. The staff is very helpful as well. I'm 44 and mom to four kids. I understand what you may be feeling. our lives have been turned upside down ! Contact me if you'd like...it's helpful to reach out. Take care Jodi
I'm from China. My mother is ALS patients, the incidence of mother when the most serious weakness in the limbs, muscle cramps crazy beat, sleep at night can't sleep, eat only eat a little, and eat and drink reflex seriously, speak not clear, extremely bad mental state, the size of the fish muscle, the muscle atrophy, arm muscles like a layer of as attached to the skin on the arm, leg muscles are very stiff, deformity of the morbid across long. At present, the mother take Chinese traditional medicine, control well, nearly a year without any development condition. Eat, drink, talk and improvement. If you like, I can give half a month to try.You can send me e-mail: [email protected]