Recent content by Tiptop12

Thank you Laurie for your reply as always. I will try and circle back in a few months if I get better idea of what's happening after seeing neuro/Emg / ortho etc. It might give others who have similar symptoms and have queried my progress some insight.

Hey guys, it's been a while since I posted here. Here is previous thread: Shoulder pain and atrophy - symptoms continue Again I just want to express my deepest appreciation for those who read this and reply. I won't get into a long drawn out overview but essentially I've been living with...

I'm really sorry about your husband Laurie. Thank you for the insight into flail arm syndrome. The only reason I have concern is because of bilateral shoulder pain and atrophy (for no apparent reason) seem to be a regular feature in this condition. And of course widespread muscle twitching and...

Thanks Kim and Affected for the swift replies. Really appreciate it. Yes Kim I did mention it to my GP a few months ago about seeing a Rheumatologist but he didn't agree. Because I had a normal C reactive Protein value he thought that it was probably more a neurological issue. But I guess I...

Hi, It's been a while since I've posted here. Again thanks so much for taking the time to read this. I know you have so much to contend with and even glancing at this is greatly appreciated . Original post which automatically closed: Leg stiffness, difficulty walking and muscle fasciculations...

Thanks Laurie, Trying to stay level headed as I wait for tests/results. It's tough! I'll post any updates as they happen.

Hello all, I just said I’d a give a quick update: So I eventually got to see a neurologist recently due to a cancellation . I was checked over and brisk reflexes (not pathological) were noted . The Neuro had a look but observed no fasciculations at the time. Near the end of the appointment I...

Thanks Nikki for the swift reply. Really appreciate it. My GP did do a reflex and strength test a few months back at initial onset of ache in legs. (Mainly before heavy legs and fasiculations started) and all seemed OK. The heavy stiff legs started after. Am I correct in saying that heavy stiff...

Hi, Thank you so much for taking the time to read this. The help your are giving people is so greatly appreciated especially as you are fighting this terrible disease. I'm very humbled to be here to be honest. I am a 40 year male (healthy otherwise) with 2 babies. About 6 months ago I had a...