Tippenme
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  • Hello to all: I am a newbie and was diagnosed after a year of symptoms in June of 2018 at OHSU here in Portland. (I had previously gone to Mayo in Rochester and was badly misdiagnosed...a story for another time perhaps.) I have been reading through the forums and am truly blown away by the compassion and support contained in these threads and feel so fortunate to have found this incredible resource. I have a very supportive family--husband of 28 years and kids aged 20 and 18. I currently use a rollator to get around and use a manual wheelchair for longer distances. My neurologist doesn't have me checking in with the ALS clinic until September but did want me to go to the respiratory lab ASAP. I went yesterday but have no idea how to interpret the results. Any feedback would be greatly appreciated! Thanks in advance for any and all help!
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