Hi Tim- My husband was diagnosed 1/6/16, so yes, I'm really new. He has lost his arms & hands, but his legs still work okay. I read both the CALS & PALS forums. We don't feel so quite alone that way. Such a horrible disease, it's hard to stay positive. Our next ALS clinic is in November at Mayo in Rochester. We also go to a support group once a month. Thank you for connecting with me.