Recent content by Thestratman56

They have changed my diagnosis from PLS to upper motor neuron dominate ALS

I am in a similar situation as you. I’ve been told I have PLS with the possibility that it’s ALS. Going on 2 years now going to the ALS clinic and they are still not sure. I’ve been exactly we’re you are now. Wanting answers to what’s going on with me. Depression and anxiety setting in from...

Hi BlsdMama, Yes I do have foot drop also. I was tripping on all the rugs in the house so we had to remove them all. I also have been getting a lot of jolting in my legs when laying down. I get a weird kind of electrical current feeling from my waist down and my legs just jolt. Very hard to...

Kevinw, I have only been reading here 1 1/2 years. But it was inactive and I left. I for one thank you for jump starting the PLS section of this forum. I hope you and others continue to post and make this a great forum for people to educate themselves and find hope with others dealing with the...

Andirai, I am under a working diagnosis of PLS with the possibility it's ALS. The doctors seem to be afraid to just say you have motor neuron diesease and we will watch it to see if it's UMN or LMN dominate as it progresses. I also heard some clinics call PLS UMN dominant ALS. Everybody has told...

I'm 6'3" and 200 lbs. that's actually thin for my height. At the clinic visit the neutrisonist said no special diet and eat all I want. Lately I've been eating like a pig and still weight the same. I can't seem to gain weight even if I try. I have some heart issues also. I have afib. So I'm also...

Nice to see all the replays. Although I am new and still waiting on a final diagnosis. Right now they are telling me it's PLS. But in the next sentence they say PLS more often than not turns to ALS. So I love to able to see what everyone else is going through and what I can expect. I do have a...

Kevinw you sound just like me. I'm very stubborn also. I will fight as long as I can not to use the walker even if I know I should. I force myself to walk on the treadmill every day to try to keep my legs going. I have to hold on to the side rails and walk on the slower speeds but hey I'm still...

Thanks so much Kevinw, I deeply appreciate the support and some hope facing this. There are people on the Yahoo site with true PLS also who have being getting by 15+ years. I will just pray that it will stays PLS and doesn't morph to ALS. I love to hear other people's stories and symptoms. My...

Thank you for your reply, yes I have had 2 emg tests a year apart. Both were good. Although I do have signs of muscle atrophy. I Have brisk reflexes, twitching, positive babinski and balance problems. Hold on to things when I walk. PT called me a furniture walker. A few problems swallowing but...

I joined this group 1 1/2 years ago being under a working diagnosis of PLS. Didn't see anyone participating in anything so I joined the site on Yahoo. I was sent to my first ALS clinic last month at Kaiser. They told me at the clinic that ALS and PLS are under the same umbrella and it doesn't...