Recent content by TheBean

may i ask your high dose of klonopin. That can cause issues with your body acting strange in high doses...and it has a long half life so it builds...

he should have addressed your bulbar concerns!

Hi, i dont usually reply because i feel i am not in a good emotional place....BUT...don't let one or two docs tell you its 'likely' something else if your gut instinct tells you its not GERD. you might go through ten docs til you find one that orders the fourteen tubes of blood including...

Hi everyone, In reading about California's right to die law, I see it went into effect June of 2015. It states that patient must be able to swallow medication independently. Does anyone know what that means exactly? I already have a G-Tube and have trouble swallowing the smallest pill; like...

Hi, I was diagnosed one year ago and went from speech/chewing/swallowing issues to difficulty walking during that time. I am trying to buy a desk that will take me through needing a wheel chair. So many of them have quite handy drawers on the side. The one I am looking at has a 20" clearance...

I am sorry for your diagnosis. I am also sorry that you lost your mom. That must have been so difficult dealing with her illness and then losing her. I was diagnosed 6/2015, and at that time I was dealing with slurred words and swallowing trouble. Now 8 months later I can no longer speak...

Good morning, I am new to this group; and haven't spent a ton of time because the reading makes me want to hide! I was diagnosed with bulbar onset ALS in June of 2015. At the time I was dealing with slurred speech and swallowing probkems. Now, 8 months later, I cannot speak, soft foods only...

Hello everyone. I was diagnosed on June 4th, though I have "known" for about a year. I have been having difficulty speaking clearly and chewing for about that long as well. If my symptoms started around a year before diagnosis, and then about a month after diagnosis I began experiencing...

Hello, I have been having symptoms for about 2 years and began putting it all together about 1 year ago. Then denial hit and even though I had a referral to neurology for now constant slurred and worsening speech, I put it off until May of this year. I just last week received an ALS diagnosis...