Recent content by Tessiegirl

Your husband isn’t suffering anymore. Look at it that way. Keep him in your heart. Pups are hard to lose just like humans. My log on name is for a little dog I lost. I bought her a gravestone and laid her where I sit at my picnic table. I just lost my son. No,I lost him four years ago. It just...

I would ignore them. People that insensitive doesn’t deserve recognition.

Echo the feeling , . Everything seems to be grey. Sky's not so blue.. friends are gone. No visitors .. jrzgrl .. take a look at the poems I wrote on here. They might help u. Helped me writing them. Im so sorry. Living it everyday. I've always said..longevity is not your friend with this disease.

No none of those. I have two very good friends who are reporters. I was going to give it to them and have them approach the local tv stations and run articles in their papers. Hopefully 60 minutes will pick it up and run with it. 60 minutes exposed several scammers that touted treatments for...

I have my own thoughts on that.

That’s all I need to know Mad Marlon. If Stephen Byers is involved in this I don’t need to go any further. . Is this the same guy who sent people to Mexico and China for stem cells ?Theres some real horror stories on him over on alstdi forum. Id suggest everyone on her go over there long...

Wasn’t RCH4 they tried to sell. It was a knockoff of Dex. Don’t doubt they would try it but u have the wrong drug. Folks no need beating a dead horse here. I suppose we will just have to listen to how well the chosen few people are doing until someone backs the drug supplier into a corner...

One more questions if u please. Why would they give you this information to start with? Did you get the information on the internet and put two and two together or did they give it to you themselves? And I quote you .... I have not signed any disclosure document but I was asked at the start...

Marlon..you are dancing around the point. I don't care if u have access to a drug for your wife. I'm happy she has slowed her progression. I take exception to anyone that talks about how well they are doing on the drug while others are suffering and can't get it.Especially on a ALS forum...

I have two friends that are reporter / journalists that I'm going to talk to Monday . They looked into the IBC challenge fund allocation for me. I'll see if they they can look into it for us.

Kim could u live with yourself knowing u had access to a drug that all ALS patients couldn’t get? Then come on multiple forums and brag how well u were doing on it? Knowing full well we can’t do a single thing to fund the charity or further the development. We wouldn’t be pressuring them other...

Look at your reply Marlon. Are u saying that u are receiving a drug approved by the FDA? Under what name? What would it possibly hurt for u to tell us the name of the drug, or molecule that passed the phase one study? It’s already in the publics view . I know of only 3 drugs that involves...

You and I know that isn’t true Mike. But let’s get over it and move on. If u don’t want me on the forum email me and I’ll drop out. I ask questions . To me they r valid . Seems other members are asking them same question.

Stephanie that’s the information I wanted from marlon in my post. Atsugi do you have a problem with me asking the same thing Stephanie did? Every time I post you have a comment or lecture. I am a new member but I’m a old timer with ALS. If RCH4 people have a patent or IP no one can steal their...

There’s no proof of them going thru a phase one trial. If there is ,show it to us. I’d like to see it on a FDA list . Thanks.