Yes, that's what I saw. My friend with ALS does not seem too excited about it. The nice thing is that money from the ice bucket challenge went toward funding the research.
Has anyone else heard about this new breakthrough. I am pretty sure it is john's hopkins. The information is easy to find online. My friend with ALS is excited. I believe the info. just came out today.
I went out to lunch with my friend and I think her speech and drooling are better. She asked the waitress if there was a way to have her food blended. The waitress said they didn't have a blender, so my friend ordered salmon with some kind of sauce and got some extra sauce. She ate fine and...
Thank you all for some really good suggestions. My friend is still in NY. She is moving to Georgia after she gets her house up here emptied. She has some male friends helping her with that. We text often.
My friend was just diagnosed with ALS. ( there was the possibility of conversion disorder.) Since then she went to georgia ( we live in NY) and had work ups by numerous drs. Her sister is an M.D., and set up appointments for her. One was an ALS specialist.
I don' t know what to say to...
Hi Everyone,
I don't have ALS, but helped my sister care for my brother-in-law who had it. He passed away 5 years ago. That was the last time I came to this forum. I found a thread here while searching for info on ALS and conversion disorder. My friend told me that she has ALS. This was a...
Hi Debby,
Thanks for responding.
I'll contact my sister tomorrow.
Post it though as my brother-in-law will probably be against it.
I'll get back to you tomorrow.
thanks again.
Helen (terrics)
Thank you all. I've been reading some stuff and i think my BIL should have a suction machine. He has biPap, but he is afraid of it so he won't use it. I appreciate you all.
terrics
Hi dehelfer,
I just read your post about doxycillin and how it is helping you. I just answered it. It you could take a look and either send a private message or a reply, I would appreciate it.
terrics
Re: On and off caretaker/ to Striker
Thank you being so understanding. I am going back upstate on Monday. My sister has to work so I am alone with my brother-in-law and I'm so afraid something will happen to him while we are alone and I can't get help fast enough. His illness is progressing...
Miss, I don't understand your anger. probably I should. And whoever asked. I've been a nurse for 40 years. Sorry my posts are so brokem up, but I was stunned at some of the rather uncaring posts.