Recent content by TeresaElizabeth

So my journey started almost 2 years ago... 5 days after my birthday I started twitching. It started out in my finger then as I consulted Dr. Google my fear and twitching spread. I twitched from my head to my toes and at first was convinced that I had MS. Then i went to my neuro and he quickly...

I understand! And yes it isn't reassuring hearing that post. But know this if we we truly had ALS there would have been some signs of it either in the clinical exam or EMG... We just need to know the details...

Squants- I'm sorry if I sounded rude... That was not my intent. I am sorry for your loss. Was your wife Dx with bulbar onset?! It would explain a lot.

Squantzmemory... You truthfully just scared the fire out of me. If you are going to make statements like that you need to tell everything not just "my wife's dr believed there was nothing wrong with her... 14 months later she was gone". You should note her first symptoms... What did the Neuro...

Moderators: JohnV, Arron, garym Post a reply 30 posts • Page 1 of 2 • 12 Back from neuro by Bart1 on June 4th, 2008, 4:29 pm Hi everybody, Got back from the neurologist. First things first. His words, and the most important ones: this is NO ALS. (I’m going to try to give as much...

I know how you feel. I have the same fear but I'm trying to overcome it. I keep telling myself my arm twitching is benign and I don't need to worry but it's easier said than done. Don't let this consume you. Go to your dr. Let him draw the conclusions they will find something if there is...

Talk to your Neuro, let him know your worries... An EMG of the tongue doesn't hurt very badly, but it will give you the peace of mind you need. I suffer from this anxiety as well... And now every time anything happens to me my mind goes Back to als. But I've had a clean emg, and from what I...

I actually had a question about cramps. Sometimes when I move my leg in a weird position ill get a cramp. But it doesn't happen all the time. In als are the cramps with certain movements or are they random?! I have had emgs and they were clean and I'm fairly certain I don't have ALS. But when...

From what I understand people don't have more saliva they just aren't able to swallow... Period. And spasms and whole body part jerks are VERY common in BFS. I'm glad you made an appointment with your dr. And getting referred is a good idea. There are so many other things that can cause your...

I'm a worrier by nature... But you have plenty of things working in your favor. #1. ALS is very rare... #2. It's even more rare given your age. #3. Youve had a clean EMG. There are many different things that could be causing your twitching and other symptoms. One of my friends just had an emg bc...

Lol. Wouldn't that be great!

Ok! So I read this on the BFS forum and thought it was an awesome quote! "If you are saying "I feel" rather than "I can't" then it's probably not ALS." Thought it was kind of neat and pretty relevant to those of us who worry.

From what I've read , it's not what you feel it's the truth behind the weakness. Muscle fatigue, cramps, and aches are all common in BFS. I went through the same fear of bulbar as well. But the emg I had of my bulbar region showed nothing. Also from what I've read body wide twitches can happen...

hello!!! I have a question... Was the problem with your ear what was making you twitch?! I go in for a CT Tuesday for my ENT to look at my sinus cavity... They are enlarged.

I know for sure my potassium has been low a couple of times... I went to the ER twice and both times I was low on my potassium. One Dr. Said I needed to start taking a vitamin bc some of my vitamin levels were low but he didn't say which ones I was low on besides potassium. Ill try to drink...