Recent content by Telmo

Hi everyone, Update on what's going on, since it's been about 21 days since my last update and I still kinda have no idea what is going on with me. Nothing has really gotten better, only worse. Sleep apnea has seemed to progress to the point where I can't sleep more than an hour or so...

Hi everyone, Been a few days, but I figured I'd give an update. I went to physical therapy and the PT noted that I have some slight shin weakness in the right leg. This has been made apparent by my slap gait, which I had failed to notice until this moment. I am going to follow up with a...

I'm sorry to have to do this to people, but I just noticed some new symptoms and immediately got incredibly worried. I realized that swallowing issues (excess saliva) and insomnia usually aren't correlated with the onset of bulbar ALS (at least early), but I have noticed that I can no longer...

Alright, visited the neurologist and he performed an EMG on the leg I was having problems with, he reassured me that there is no concern whatsoever about ALS. He told me that I still had rhabdomyolysis of unknown origin, and I will be meeting up with him again in a few weeks to keep track of...

DCDad, I'm incredibly happy about your positive EMG results! I am still waiting mine on Friday, and I'm starting to lose hope. The weakness in my legs has advanced since earlier this week, to my entire hip.

Okay, per both Mike and your advice I will stay off this forum until I have received EMG reports. One last update before I go is that I went to a physical therapy session today and he confirmed both brisk reflexes in my affected leg as well as noticeable clinical weakness in both hips, with the...

This morning I woke up and thought I was having trouble with shivering because it was cold, but it turns out I'm twitching more sensitively to the cold. I read up on _this_ and it looks like it's in line with something called MMD (myotonic muscular dystrophy). I also woke up and realized I have...

EMG Friday, as you can tell I'm not doing a very good job of keeping it together. My apologies. :( By the "mild symptoms all over my body" I mean cramping, awkwardness, and loss of coordination. It's not a lot, as I haven't fell over completely yet, but I am noticing a distinct lack of balance...

LizF, Thank you for the insight. My CK levels are still elevated, but the exercise I put in was not nearly strenuous enough (I feel) to warrant such an elevated CK, and the doctors have no idea either. The doctors did diagnose me with rhabdomyolysis, and said it would explain a lot of the...

Updating from the ER.. doctors told me to go myself to get an IV done. I've now got cramping in both hands, both feet, and forearms. Annnd now my CK has been registered at over 6000. I'm very worried still. Not sure if this is still possibly ALS.

They haven't recommended anything yet as it is only 7:30 AM where I am and I have not received contact from any doctor. The results were given to me by an automated process. I don't know what they'll recommend, as I still haven't exhibited any signs of clinical weakness. I do feel my muscles...

Hi everyone, I'm struggling to type this as I have just received my CK results and they were reported at 1,114. That is about 5 times the normal rate, which says that damage is definitely happening to my body and atrophy is happening. I am incredibly upset right now as this is a huge blow to my...

DCDad, Thank you for the kind words. I will keep you in my thoughts as well, and am praying for the best for the both of us. Stay strong!

I think there must be an edit timeout per post because I can't edit my previous post right now! I have an EMG scheduled for this Friday, thank goodness. I'm praying for BFS, anything other than this dreaded, terrible disease. I noticed some weakness in my right leg with some fasciculations so...

Thank you, Atsugi, and I hope that is the case through all of this madness. It's incredibly frustrating right now, as selfish as that may be to say. I do have more questions because something is bothering me: I went for a brief run and noticed a bunch of awkwardness when I initially started...