TedH5

Hi Ted, Hope things are going well for you. I'm super excited because my dad is coming home in a few weeks. Don't know if he'll stay home or not. We are still working out the details. I had my pity party last week so I'm ready to be strong again and help my family deal with this the best when can. I'm doing alot of praying and just taking it one day at a time. Have a great week Ted! Kim

Thanks Ted! Xoxo

Pretty good! Progression is faster than I want (whose isn't?) but I'm enjoying being retired, spending lots of time with my son, friends, and family, and even cooking and crafting when I feel like it! We're all heading to San Antonio this week for my 3 mo. clinic visit and some back to school shopping... it's a 5 1/2 hour drive... with a 5 year old... should be interesting!! How about you? I haven't seen you on here or FB much lately!

Ted, you're a good egg! Thank you! Hugs!

Hi Ted,
What are you doing up so early this morning? I am actually at work waiting for the switchboard to ring here at the switchboard. I normally don't work this shift but am helping out since someone's on vacation. The phone rings like once a hour at most. Which makes for a long night. I'm used to working noon-6pm when its fast-paced. What did you do on Father's day? I talked to my dad on the phone and he's doing well. He is homesick though.

Hi Ted,
Just wishing you a Happy Father's day! Hope your week has been going well. Kim

Hi Ted
Could you shed somelight on your stem cell experience. My brother was diagnosed with ALS and considering doing it I dependently. Can you tell me your I provement and/deteriation if any. I really need your help?

Hello Ted, I am new to the forum. My husband Aubrey was diagnosed in April and we also see Dr. Glass. I think he is a wonderful doctor and his nurse Nicole is so sweet. I wanted to know how long after u found out u had ALS did it take for the symptoms to progress?

Concerned wife not ready to lose my husband.

Hi Ted,
My name is Kim and my father was just recently diagnosed with ALS and am very scared. I am extremely close to him as well as our children are. My husband and I will be married this fall for 19 years. We have three children. Our twins (boy/girl) will be 15 in September and our youngest son is 8. I'm new to this forum and have found the people on here to be very kind and helpful. Have you used the drug Ritulek or been in any clinical trials. My dad is seeing a ALS specialist on the 12th for the first time in Dallas. My brother and sister live there. We live in a small town and don't even really have a neurologist here. Hope your week has been going well. Feel free to write me anytime and tell me about yourself. Kim

I understand your opinion and I agree with them, it does makes sense! Today I've been feeling a kind of tingling in the face and in the right tight. Plus pains in wrist/neck and little twitches it is not easy to get peace of mind. Best, GKGK.

Hello TedH5! Just one more thing, check the onset of symptoms of the member "Erica", it was pains in neck/shoulder before weakness! Best, GKGK.

Hello TedH5! I tried to answer you in my post "Worried Again?" but I dont know why the response needs moderator approval. Sorry for importunate you and others in the forum with dumb questions. As I said before in the past I was very worried and since 2009 I keep my worries out of my mind! I've been twitching for 7 years (somentimes more intense than others). And in the last 20 days I am expericeing pains in my left wrist (when hold or pushing heavy things) and in my neck (depending the position) and a little increase in my twitches (including in my face)! I ask myself if it is a starting of real weakness! Thats the reason I am worried! I'll try to keep the worries out of my mind, be sure! Ohh, I dont have facebook! Best, GKGK.

Hello friend,
Wanted to send a virtual hug your way.. Been a horrible week.. I know that it is an important time for friendship..Sending warm thoughts to you and your family. Such a tough week we have had, and wanted to share a hello, albeit a sad one..

Thanks for the reply! Yes, please let me know. I did see some more threads on this and I see that it may be geographically unavailable to me. it looks like it's only in Atlanta (perhaps?). But, yes, I thought the parameters may fit me as I'm newly diagnosed, still walking, talking, eating, breathing, and (so far) both hands still work (but they're slow . . . . ) Good luck and thanks for keeping me posted.

Hey Ted! Hope you are continuing to do well. Doc R from MCG told me that he had had the opportunity to meet you. We're seeing news that Neuralstem is expanding it's Trial and of course are wondering if you're going to participate and receive the cervical injections. All the best to you and your family, Deb