hi , my son turned 38 in January he was dx last July it has affected his left hand and arm at first... he has a good outlook because he really don't know how bad this will affect him but , i think he now is finding out i see him shiver a lot he was a go getter now he lets others do things and backs off .. he has food cut up for him as he has some swallowing problems and he sounds drunk now when he is tired ,he also starting getting weak as far as standing he is suppose to be slow progression but , it is not slow enough for me ... then i realise how many have already passed away who were dx same time as him .... and some have had it for many years this is my hope for him and for all want the cure now .. hopefully by accident someone somewhere will find it soon . so many trials going on ... thank you for your concern , you and all are in my hopes and dreams .