Recent content by tazzi

well, i've been here before, wonderful people by the way. so, i had latest neuro exam, follow ups, love the doc. however, nothing much new. i have read that pain is a real part of als possibly. i have muscle pain still, and worse on exertion. it's as if i do a little, and the next day or same...

thanks paul no liver problems at all. i do take supplements, they ruled any out as possible causes of any problems, but, i'm keeping your suggestion in the back of my mind, thank you. don't worry about being lazy about my posts, there's alot of material around here one can read. i appreciate...

no check for lyme haven't had that one yet...although...they are now talking CFS, FMS, along with neuro possiblitites, or polymyositis....i had endo today..she thinks another autoimmune or neuromuscular disease is likely...given all the other tests i've had and my symptoms.. thanks though, i'll...

as far as i know, still elevated ck (somewhat elevated). my muscle pain went out with a vengeance (sore to the touch even), but seems to be gone. my cognitive function is way better, like i was in a fog for the last few years. it's as if, i was attacked by something, and left in this weakened...

so far a bit better ok, so i've been on carnitor for a few months now, and, it seems to be helping. but not everything. very little shortness of breath, so that's good. a little more noticeable muscle durability you might say, in that they don't pain really bad or give out quite so quickly, in...

question keith hi, hope you visit here again, i was wondering what symptoms you have with the polymyositis. the one thing i have noticed with muscle, is that my biceps for example, are very quickly painful, like a burn/pain almost, when doing anything that utilizes them. it's like i went from...

forgot crystal my symptoms have been for about two years now, maybe some atrophy but not much. take care.

hi crystal i'm hypothyroid, hashimoto's disease. well, my family doc says no MS because she see's no sign of it in her mind. i did have an mri about 7 years ago now, and it was normal. of course, that was then. no spinal yet. no muscle biopsy yet. one neuro said she thought i had been...

thanks crystalkk yes, i've been to a neuro, actually, I had a *team* of sorts. and another neuro also. i realize nobody can diagnosed you and so it's i suppose just venting symtoms here, but it is a bit frustrating. i'm hangin' in crystal. i've had tons of tests. they haven't really found...

Ok, i'm under pls/als or something else below. I had developed glaucoma, now, after no treatment and about 2 months, it's gone. But, I have had odd feelings of weakness in right leg, as if it will give out but hasn't yet. This is getting more frequent. Today, I can hardly write with my right...

thank you Yes, my Neuro is at that hospital and I am a bit familiar with Dr. Strong. I am in constant contact with the neurologist, I like her, but I seem to elude any definitive diagnosed so far. Generally, my bloodwork and so forth is good, aside from bouts of mild anemia. My GP says I'm the...

Hi, I'm looking for some guidance I guess. Back about 1995, I had about 3 bouts of sensations I can only describe as my muscles feeling like "concrete". It was kind of scarey but passed, and I forgot about it eventually. Now, forward to two years ago, all of a sudden I experienced severe muscle...