Tamvic1

Hi Tamvic. You just posted a Visitor Message to yourself, so it's doubtful anyone will see it. I suggest you post a message in one of our subforums, maybe just to introduce yourself first.

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HI- looking for some opinions. I was diagnosed VERY early on in the progression of this. I went into the Doc for unrelated back pain and after a neurological work up he was concerned enough to send me to have an EMG. I was diagnosed possible and then 4 months later moved to probable. I still was feeling good and, with the exception of cramping, "creep crawlies" in the left leg and atrophy in left thenar all was well. I went on a strict regimen of vitamins almost immediately:

All progression stopped- I was told that ALS is a progressive disease and I'm not progressing- therefore.... Fantastic news! But no one could tell me if it was a misdiagnosis or the vitamins helped. Personally- I didn't care. I knew I would continue to take the vitamins just in case. I have been stuck overseas a month longer than planned and did not bring enough vitamins to last the extra time. The last few days symptoms have started to come back. Any thoughts?

Hi I'm a little confused as your profile says you are being diagnosed with ALS, but you also have a diagnosis date.
It would be great if you could start your own thread and introduce yourself so that we can get to know you and support you. Tillie