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  • Your asking the same question we all want an answer to. My wife has been slowly getting worse over the past year and was diagnosed with als 5 weeks ago.

    I have also been struggling with juggling everything and the constant need to alter our lifestyle due to the continuing limitations of my wife's mobility. I never imagined life like this in our 40's but here we are. I keep telling myself that there are others out there living and dealing with this but beginning to feel like nobody can truly answer your question.

    If someone can please share. All I can tell you is to just hang in there. Good luck and best wishes.
    Hi Tamara, I relate to your post so much. I am new to this site as well. I have twin 7 yr old girls and my husband was diagnosed in 2014. I'd welcome a fellow scared worried partner in this time of ALS. I am more open in private email if you want to chat. Try me at [email protected]. Hope to hear from you! Lisa
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