Recent content by Syekick

Joe passed away at Vanderbilt on Sunday August 11 from ALS and a C Diff. infection. His Memorial service will be August 23 at the Mississippi Veteran's Cemetery in Newton, MS. Austin and Bell Funeral home in Greenbrier TN is handling the arrangements. Shannon

Sherry, I wanted to let you know that Joe passed away last Sunday the 11th. He developed a C Diff infection and a UTI and didn't respond to the 4 antibiotics that they had him on and became septic. I didn't expect him to pass. I truly thought that he would respond to the antibiotics and I...

Yes, I'm doing fine. ALS just chips away. Just the same as yesterday or last week. Weaker biceps and legs since November. It is what it is. Hope you are still doing well.

I spent 18 months and three EMGs that didn't show ALS. The wife and I figured that's what it was though. My body finally showed ALS symptoms at EMG 4 at 18 months. Prior to that, just drop foot and a diagnosis of peripheral neropathy

I drink coffee three times a day and smoke cigars. I drink around 50 oz a day. I use Bipap when I lay down as that's when I simply can't suck in air. Otherwise I use the bipap about 50% of the time during the day. I'll drink coffee, drink beer, whiskey until I simply can't No side...

I'm using the Press-On One Handed Nail Clipper cost around 30 for now. The best solution I have found. I use a tool sized file to file the edges.

Mine hasn't come out but does get replaced every 90 days. As per the nurse who changes these for me, we can do it ourselves by the way, they recommend replacement periodically because eventually the little balloon holding the PEG in place will rupture. Just saline in the balloon so no big...

Thanks everyone. I hope and pray all of you have a fun filled great day! I sure will.

I'm doing well. Little things going. breathing still oK. Fingers not what they were a few months ago. FloydP isn't doing well. Very fast progression. Been bed ridden since mid Nov. I hope he makes it till summer. We talk nearly every day. Life is good and today is terrific.

I began having problems with my left foot March 2011 and initial diagnosis ran that it was related to diabetes type II, which I had left behind In Sept 2003 after losing 200lbs. I thought the two neuros I saw from June 2011 till March 2012 were wrong about that as it didn't make sense. I...

@sunewun LOL!

Hiyas! Glad to hear progression isn't moving too fast yet for your wife.

With plenty of time to sit around and think, my mind wandered into something I consider funny. Not real, nor serious. Just a funny story I put together from all the possibilities of this odd plot. I hope you enjoy it too. A new ALS solution possibility! I’ve been looking on Google...

For me, I think it's just my lack of activity sitting around all the time. House temp is 74 year round. Feels cold sometimes during the winter and summer both. I just get a jacket or sweater pulled on. My hands often are freezing cold so I wear gloves, those without finger tips so I can...

I am also an optimist and don't let much get in the way of my day to day enjoyment of life, love, and comedy. for example: Last night as the wife helped me to get setup in bed so I can read before I get to sleep I asked her to bring me a box of Whopper candy malted milk balls we had...