Thank you CindyM yes - we are running a Pie throwing contest this month with 6 kid friendly teachers who are willing to put their face on the line! ( yes - i am one of them!)
God grants peace
Hi Mndireland
i have not posted since posing the loss of my dear friend - and surrogate brother.
I have to tell you the emotions of my loss and his freedom are so complex and I canteven beging to explain and you are experiencing much of the same - and honestly - i did not want...
Hello all-
It has been a long time since I have visited / posted -- i had begun to be consumed by the deterioration of my friend John. - John has been granted Mercy and peace. He enjoyed his grandson for 2 months before ALS forced him into a fast final stage progression - which is what he was...
Does anyone have a quality portable ramp for a power wheel chair? my PALS friend needs to have a portable / semi protable ramp system to get up a 3 foot rise...
Any ideas or used equipment would be greatly appreciated!:-D
please vote!
OK - I went to a car assessory shop and they had a seat cover made of lamb-skin and they also had a seat "pad" which had multiple "air-bubble" spots to increase air circulation and change up pressure points on the back and bottom. If you had to pick one which would you pick?:mrgreen:
Hi everyone-
I have been trying to find some kind of breathable cover for my PALS friend for his wheel chair pads. Every time I hug him he is soaked with sweat and I know he must be uncomfortable - I have continued to search medical supply co. online but strike out --- any recommendations of...
Hi everyone --
Gina and I were just discussing the fact that the show Ghost whisperer just recently ran a story that was trying to portray a man with ALS. although it is nice to see the disease become a bit mainstreamed to help educate, that only works if the information they were given was...
well - the most any of you have heard from me in the last 3 months have been fundraising in Honor of my friend - all of which has been successful.... but now i have been confronting the ugly realization that my friend and mentor has deteriorated to a point where he will need a peg tube - and he...
Update!
Our principal was further featured in our local paper and our icecream sale will happen on the 14th - but now the icecream company has also decided to contribute 10% of all sales on the 19th to go toward John's medical fund... WOW is that incredible support?!
See the article at...
I wanted to share the new fund raiser we are about to run on May 14... mainly because many of you could consider running a simmilar event for your PALS of for ALSA donations.
John's ALSA walk team : "Johnny Walkers" raised over $10,000 last year for our walk,
along with the MHS v.s. ALS basket...
Fyi...
... just a tip to help you get to the video - after you click on the red camera - you will be taken to a new window- John's story will load and you need to hit the " play" key to get his story running - you will not see his story on th right because you will have already selected john's...
We recently had our principal John Blankush, who has faught the battle with ALS for almost 2 years now, featured on a local news channel.
They did a great piece on John and what ALS is and how coragious he has been despite the deterioration of his body and speech -
please go to this website to...
help!
Hey Terri & Lee -
wishing you the est of luck and look forward to an email from you, explaining how i could run a fundraiser like this -- hope your event goes well - please fill me in as soon as you can because i'd like to do this before the middle of May!
Thanks &good luck!
big bucks
my students in my 5 classes raised $761 to go toward my hair cut - the total contributions were $2,300 for solely the hair cutting ..
We are hoping total community contributions will be $10,000 after all consessions and ticket sales etc..... we are still counting!
All money raised...