Recent content by Swimmer7

Well this is why I came to the site- to get those sorts of black and white answers! Dusty, I do have clinical weakness and loss of reflex in the left arm. I'm not a completely healthy person worrying over nothing. And numerous posts here have told of declining ability at basic tasks which...

Yes, you speak the truth, Clearwater. I think the medical part of my brain isn't as convinced as the Neuro is, but logic says I should be as she indeed has excellent MND credentials. She isn't considering my leg symptoms yet though as I can walk heel to toe and the EMG was clear- even though...

Astugi, I'm still in the investigation stage. I have no diagnosis.

Hey Clearwater, well I did say that I haven't worked in neurology hence the reason why I would visit a site like this, to get the perspective of those who have lived the experience. So in neurology terms, I do feel like a rookie and I know that many neuro conditions can present in different ways...

Nikki, Thanks a lot for that logical input. That's exactly my problem- I can't walk for more than a hundred metres without my ankles going floppy, my calves cramping up and my leg needing to be carried. Walking around my apartment is fine as it's short small steps but once I'm on a pavement...

Oh, another connected comment I had intended to make was that although it's repeatedly said here that MND/ALS isn't a sensory or pain syndrome, surely most people experience the muscle aches and cramps - which really are painful. You're more than welcome to correct me!

Tokahfang & Nikki J, thanks a a lot for getting back to my post. I have clinical weakness of my left arm, it's like 50% weaker than my right, and the reflex has gone (suddenly)- though nothing appeared on EMG/NCS. This weakness came on suddenly, I probably could put a date on it. My left leg...

Hey All, I know the stickies are there to help alleviate fears from the worried well and to ensure that those who really need the support on this forum receive it. However, I think some of the blanket reassurances of the stickies can be misplaced (not maliciously of course). For example, when...

Thanks a lot, everyone. Your responses are reassuring and appreciate. I'll limp onwards and continue the search. x

Hey Kosmoskatten, thanks a lot for your response. I haven't had a spinal tap or neck/spine MRI. I was reluctant to have the spinal tap for obvious reasons, and my neuro consultant didn't insist on those tests so I let it go. I considered Lyme alright and might just ask my GP to run the bloods...

Nikki, thank you very much for taking the time to respond. I very much appreciate it. As you've succinctly and easily deduced, perhaps my symptoms are unrelated. For a newbie it's very confusing and of course you become overly sensitive to every symptom, but when you are familiar with the...

Thanks for replying, Dalvin. Yes, I've been reading through the stickies and they're very helpful. Everyone has a different disease presentation to some extent and while i do listen to the consultant, I'm also conscious that many people are told they're fine, when in fact they're not. So I...

Hey All, With your experience of symptoms and other people's posts, perhaps you could help shed light on what THREE neurologists cannot, please? I'm worried but not freaking out- life is like a box of chocolates eh? 37 yrs old/Male Symptom onset: 9 months ago- mild non-specific tremor- it...