Recent content by Swedengirl

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    Bulbar PLS ALS ???

    I did a EMG on friday and it was clean, that was very nice. But I have thought that pseudobulbar palsy would show on EMG. Now I know better. He told me that pseudobulbar palsy is what I have and maybe it can progress to ALS. What I have is progressive, but only affected in a few bulbar muscles...
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    Bulbar PLS ALS ???

    3 days until EMG. I am so nervous
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    Bulbar PLS ALS ???

    Waiting for EMG and I will post the outcome. But somtimes I think it would be better not knowing.
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    Bulbar PLS ALS ???

    Everything else has been checked. My doctor has no suggestion, but everytime we meet, and that is once every 2 month he says that he cant ruel out ALS. That and the fact that this is progressing stedily, made me pop the question about Rulizol. Im not playing doctor, but what would you do in my...
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    Bulbar PLS ALS ???

    My neurologe think this is very strange, but he doesnt seem to know that som people can have bulbar onset in PLS, and when I say psedobulbar ALS he says that I should have more problems with my limbs? I dont know. There is something called IBS isolated bulbar.... but he hasnt heard of this, so I...
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    Bulbar PLS ALS ???

    My English may be pour sometimes… 4 years ago I noticed that when I had just 1 beer or 1 glas of wine, something happened to my speach and I could not say any cononants like K S L P etc, only vocal sounds (this was very strange. I had an antidepressive medication called Mirtazapine, which is a...
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